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Sunday, November 20, 2011

Prayers for Ruby Grace

Our pastors rescued a beautiful, precious Ugandan princess.
Her name is Ruby Grace. She was literally dying when they met her and fell in love, and God moved Heaven, earth , and a few governments to bring her home.

They are now at Phoenix Children's with her. She has undergone 3 surgeries this week to reduce the numerous hydrocephalus cysts in her brain. There have been complications since the last surgery, and her situation is serious.

Please, my friends, I am begging you to hit your knees with me and plead for this sweet baby's life. You can read updates and leave a message of encouragement for them at:

http://www.aplacecalledsimplicity.blogspot.com/

Tiffany

Tuesday, November 15, 2011

Diagnosis vs Prognosis

Since Katrina's surgery, we have spent a lot of time trying to sort through the mounds of information we received. At times, it is nothing less than overwhelming.

A great friend, and fellow doctor's office frequent visitor card holder, spoke some amazing words of wisdom over us. She explained the difference between a diagnosis and a prognosis. A diagnosis is a statement of fact. A prognosis is where God steps in and works his miracles.

Katrina's diagnosis was hard to hear. Mild cerebral palsy in the corpus collosum, probably caused by a lack of development during the first trimester of pregnancy. Her gait lab shows her overall muscle structure and strength is severely underdeveloped.

Her prognosis is a different story. We will be meeting with a neurological psychologist for extensive learning testing. This will give us a better idea of how the damage might affect her learning and how I can teach around it. She has already made strides just in the few adjustments I was able to make based on my limited knowledge. After losing the dreaded casts, we will be doing physical and occupational therapy to improve muscle strength and gross and fine motor skills.

But you know what I see? I see a beautiful young lady I was never supposed to conceive. A child we could have lost a birth. An intelligent, sensitive, caring, fun-loving giggle queen.

And in the end, that is all that really matters.

Here we go again!

My big girl and I get to take a road trip tomorrow. 7 hours, multiple pit stops (including the absolutely necessary visit to Cabela's in Provo), sushi at the mall, snuggling in a hotel room.

Thursday morning we report to Shriner's bright and early to get those blasted casts off! Kat is more than ready to be done with them. Then it's 5 hours on the road to Grand Junction to meet up with Grandpa at the orthotics office to make molds of her legs for her braces. Then another 4 hours and we're home again.

We are both looking forward to a big girls' road trip. Anyone want to meet up somewhere along the route?

Wednesday, November 9, 2011

Chaos adventures

Ok. I have really got to get some posts up. My computer is back from the shop with a brand new keyboard. Can I tell you how excited I am to have an apostrophe key again?!?!?!

And I have over 1000 photos from the new camera to sort through.

And Christmas presents to order.

And lessons to plan.

But, the new iPhone (that I got for free - booyah!) is calling. Especially my new pic collage app.