* 260 weeks
* 1825 days
* 43,800 hours
* 2,628,000 minutes
* 157,680,000 seconds
People sometimes talk of life changing moments; most people encounter them in one form or another. They form milestones by which we track and plot our life's course, reference points - and today marks the greatest one in my life to date.
Today is the fifth anniversary of first hearing the words 'multiple' and 'sclerosis' as applied specifically to me. It's not a big thing, not if you say it fast and aren't personally pitched into the middle of it yet on the inside it's huge, overwhelming and calls into question everything one builds a life around, relies on, considers 'normal'.
For most of the first five years of the rest of my life, I charted, in the blogs my progress and regress; the trials, tribulations, triumphs, anger, pain and betrayals. For those that would take advantage, those that don't want to listen, to attempt to understand what this life sentence means or those who just need to pull the stick out of their ass I don't have a lot to say, but if I did it would probably be something like "go forth and multiply" or "sex and sightseeing - just do it". Well, someone has to and I sure as Hell can't travel any more!
Along the MS road lay many opportunities to discover new things, view new perspectives and trim the crap out of my life and this I have done, at times quite deliberately discarding things that no longer worked for me - routines and responsibilities and people and expectations. I probably missed more than I collected, but shit happens and 'Not My Problem' has become a necessity for survival. I think most people, at some time in their life, sit back and audit what's going on, revise their personal priority list and just occasionally, the timing of this is taken out of our hands.
October 15th 2001 was the day it was taken out of mine.
1825 days on, I don't give a crap what people think if I'm asleep all day and awake all night; prefer to spend my time alone in my Hermitage; suffer idiots, wankers and users not at all and daily strive to adhere to that good old Serenity Prayer, looking for the strength to accept the status quo, the courage to attempt things that will bear misery for days to follow, and the Wisdom to know when to change the batteries in the Caller-ID unit.
If I had my druthers, I'd choose to live in a big house above the sea, miles away from humanity, with 1000s of books, room for all my junk and no neighbours to bitch if I crank Pink Floyd at high volume all night. But I can't choose that, and I don't have any choice about living with MS either. Luckily, my torch doesn't shine very far down the tunnel that is the next 40 years and quite honestly there isn't much point looking much further ahead than the next scheduled burst of activity. Besides, no one knows what's coming and any one of us could get hit by a bus tomorrow.
What is this new chapter, chapter 5?
It's more of the same shit as the last one, but with a new wrapper. I was getting very bored, you see. But like the last one, I'll be taking it as it comes, one day at a time (well every few days anyway). You can come along if you want, one day I'll need someone to push my chair.
Happy Birthday to my
Mon
Ster. Your infancy was a bitch, what does your childhood have planned?
"Ah, I was so much older then, I'm younger than that now" - Bob D.