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Monday, March 4, 2013

We are Halfway!


God has blessed us!  We are 6 weeks in with this Spica cast and Rivers is doing so well.  Initially, it was difficult learning how to hold her, how to pick her up, and how to keep her on my hip, but we have managed to adjust to our new "normal".  Thankfully, God answered my prayers.  She has slept so well and hasn't seemed bothered by it one bit.  I'm able to keep her clean and the diaper change situation has been fine :)



Like with so many other things I've been through, I have seen God's hand in this.  I'm always reminded of that saying, "Sometimes he allows you into a what seems like a hopeless situation so that you can only find hope in Him".  I know this wasn't hopeless, but to find out something isn't just "perfect" with your baby and to know the possibilities of what could go wrong just seems to turn up the worrying to unbearable levels.  Thankfully, He knows just what we need, right when we need it.  
     Probably about 1 week into the cast, I was just absolutely taken over by fear and doubt.  "What if this doesn't work?"  "What if the bone doesn't stay where he places it?"  "What if she doesn't walk well?"...."or at all??"  

Cast all your anxiety on him, for he cares for you. 1 Peter 5:7   This scripture is in my heart.  I know this...and yet, I can't stop worrying about those little bones.

And then He speaks to me.  I can't remember a time when I've ever studied Ezekiel.  Not even sure where to find it, but God, in his ever faithful sweet voice, puts the same passage in front of me on the same day 3 times.  3.  Times.

And he said to me, “Son of man, can these bones live?” And I answered, “O Lord God, you know.”  Then he said to me, “Prophesy over these bones, and say to them, O dry bones, hear the word of the Lord. Thus says the Lord God to these bones: Behold, I will cause breath to enter you, and you shall live. And I will lay sinews upon you, and will cause flesh to come upon you, and cover you with skin, and put breath in you, and you shall live, and you shall know that I am the Lord.”
 So I prophesied as I was commanded. And as I prophesied, there was a sound, and behold, a rattling, and the bones came together, bone to its bone.  And I looked, and behold, there were sinews on them, and flesh had come upon them, and skin had covered them. But there was no breath in them. Then he said to me,“Prophesy to the breath; prophesy, son of man, and say to the breath, Thus says the Lord God: Come from the four winds, O breath, and breathe on these slain, that they may live.”  So I prophesied as he commanded me, and the breath came into them, and they lived and stood on their feet, an exceedingly great army.  Ezekiel 37:4-10

God is so good to me :)  Here I am, consumed with my worrying and in his lovingkindness he takes time to show me that He can do this.  That He's got this.  He'll bring that little hip together, bone to bone.  HE is in control.  He's done it before, for a whole army of men, in fact.  SO- I gave that sweet baby up to him.

Last Wednesday, Rivers was put to sleep for a second time.  They repeated the arthrogram (looked at the socket with dye and Xray) and put her into a second cast.  Ben and I waited nervously for 1 1/2 hours before our doctor came to the waiting room.  He tapped on the window with a huge smile on his face.  Rivers' hip looked great.  "Better than he expected".  Specifically, the muscles holding the hip in place had responded to the casting.  This was an answered prayer!  We were all thrilled and so thankful.  It really makes the next few weeks in the cast seem like a piece of cake.  God is faithful:)

My sweet girl will be in her Spica for 5 more weeks and then a brace at bedtime.  Perfect timing for beach season!  Here are a few pics from the last month.

She is such a sweet baby :) A bean bag is a must have.

After this, I learned to do a cast check a few times a day :)

Wagon + Pillows saves mama's back :)




Wednesday, January 9, 2013

Here we are...




So, here we are.  6 months and I'm finally sitting down to write my first post since March.  March.  Really??  Needless to say, every second of my day is planned out. Between work and keeping up with these Dewbabies, turning on the computer has been the last thing I wanted to do :)  I think it's time I share some of this sweetness, though.  I mean really.  Look at that picture.  How precious, right?

Rivers has been such a sweet blessing to us.  She is a happy baby, always smiling.  I "Baby-Wised" when she was born, and oh my goodness how it worked! (that's a post for another day).  She is crazy about her brother and sister and they are equally happy about her.  After what we had been through before I was pregnant with her, knowing that SHE is the one that was meant to be with us at this exact time has made every moment so much more special.

Around age two months, I really started noticing that she had a preference toward the right side.  She kept her head tilted that way and really became fussy when I tried to have turn to the left.  She was diagnosed with mild torticollis and we were referred to a Physical therapist at UMC.  We have been on Wednesdays for several weeks and seen a lot of improvement.  Just before Christmas, our therapist (she is SOOO GREAT) mentioned that Rivers seemed to be kicking her left leg more when playing and leaving the right leg pointed out like a little ballerina.   When torticollis is present, hip dysplasia often can coexist.  Knowing this, she recommended that we discuss it with our pediatrician.  Thankfully, we had our 6 month check up scheduled that week.  After her physical exam (which was normal), our doctor ordered a hip Xray just as a precautionary measure.  So, the following Wednesday, after therapy I dropped in to have the xray and didn't think a thing about it.  Thursday, I received a call from our doctor.  The Xray showed an abnormality and she wanted us to be seen right away.  It just happened that the Pediatric Orthopedic Surgeon she wanted us to see had an opening that afternoon.

At this point, I'm sick.  I am physically sick.  My heart just can't bear the thought of anything being wrong with my baby.  We've already worried and prayed over a choroidal cyst found in the ventricle of her brain during an ultrasound, the decreased amniotic fluid, the head tilt...Did there have to be something else????!!  Ben read all he could online about hip dysplasia before we saw the doctor.  He tried to comfort me, bless his heart.  

When Dr Wright came into the room, he took our little baby girl and examined her.  He then asked why we were there, had WE noticed a problem?  His exam was normal.  After pulling up the Xray, within seconds he turned to us and said, "She has hip dysplasia, you are not going to like me very much in the next 20 minutes".  Rivers right hip socket is misshapened.  The socket is flat and not round.  Therefore, the femur (the leg bone) is not developing properly within the socket.  Her hip is dislocated. WHAT?  She has no problems, she loves to put her toes in her mouth.  She jumps in her bouncer.  Say that again.??  In her case, she is asymptomatic and would be, had we not found this.  She would probably have a normal childhood.  In the late teens and 20s, the problems would more than likely hit her, leading to a complete hip replacement by age 30.  PRAISE GOD for our therapist and pediatrician! 

At this point, the goal is to get her hip and femur to develop normally (remold the socket).  On January 16th, my baby is going to be put to sleep, the hip will be positioned, and she will be placed into a body cast called a Spica Cast.  This will mean a cast from her chest down to her right foot and to the thigh on left leg.  We will be in this for 6 weeks and then it will be removed and she'll be put to sleep again so that it can be replaced.  After the next 6 weeks it will be removed and she will have a brace to sleep in.  The doctor feels like this will do the trick since she is so young and developing still (Thank you, Jesus!)  The casting will hopefully help us to avoid surgery.


So, here we are.  6 months old and facing a new challenge.  My heart hurts.  I'm scared.  I'm grieving the loss of squeezing those little fat rolls for three months.  I know how blessed we are, though.  God is providing.  He loves us and he is caring for my baby girl.  Not sure how the next 3 months will go, but I know He already knows the plans he has for her and our family, good plans, and I am comforted by this.  Will you please pray with us?  We are praying for healthy hips on the other side of this....and maybe for a semi-clean cast during? (I hear diapering is tricky!)

Our doctor recommended that we visit this site for more information on hip dysplasia.

www.hipdysplasia.org



Tuesday, March 6, 2012

Rivers


After weeks of yuck, I'm finally feeling better and moving right on into nesting :) I am now 23 weeks pregnant with our sweet baby girl #2 and daily reminded of the love God has shown me with her. We have come a long way to get to this point, and are so thankful that the desires of our hearts have lined up with His will. Rivers Dew will make her sweet little debut in late June! We have had the chance to peek at her so many times already, and she is just beautiful :)

So, they say she is weighs as much as a large mango- just over a pound- and around 11 inches long. I feel like she's twice that!
She definitely has a daily routine. About 9 am, 2 pm, and 9 pm she really is active. Always, when I'm finally able to lay down at night, she starts stretching and kicking. My favorite has been during every choir practice and when I sing with the worship team during church, Rivers starts kicking so hard! It never fails :) I'm really hoping she loves music like Ainsley!


Monday, March 5, 2012

Happy Birthday, Noah!



Happy, Happy Birthday to my baby boy! Noah turned 6 on March 1st :) 6!?! I'm really having a hard time believing it's been that long since I walked around big and pregnant during Optometry school. Time is flying!




















Tornado warnings couldn't keep this Super Mario Party from happening!

Noah and The Jakester

The girls played as hard as the boys did!



I mean, how stinkin cute are these besties???!!


My baby had the biggest time. Thanks to everyone who came! Noah declared this birthday the "best one ever!"....and that makes my heart happy.








Wednesday, December 21, 2011

Wednesday, November 2, 2011

Trick or Treat!


An angry Bird ready to fight for his eggs..

My "sparkly Mermaid"


"Mah-maids don't like pictures, mama!"





Thursday, October 6, 2011

You never know...

You never know at our house what mood our sweet Ains will be in. Some days, I fight about cups, because they aren't "girl" cups, some days it's because she wants "boy" toys and not "gull" toys. I picked her up the other day, and she decided she was a "PIWATE"...Arrrrrr!....