Saturday, September 29, 2007

Grandma's going away dinner...
at Steve and Jennifers house tonight was great as usual. Julie and Andy and their kids were there except for Alex who had other plans. Thats a teenager for you. Also Aunt Sylvia came. We had a nice Mexican dinner followed by apple pie and carrot cake. I am adding the 4 generation pictures from my family.


Friday, September 28, 2007

The rest of the story..
Here are a few more pictures from Sunday. The first is the 5 generation picture of Great Great Grandma Brahm, Great Grandma MaryLou, Grandma Connie, Mom Kristina, and sons Collin and Nathan. The second is one of Evelyn, Sylvia, Mary Lou and our mom Bernice.

Tuesday, September 25, 2007

Sunday was picture day at MaryLou's.
Here are a couple of 4 generation pictures taken of Connie's family and of Debbie's family with their Mom and Grandma. I will add more when I receive them. We had a nice though brief visit.

Friday, September 14, 2007

Celgene came through...

After initially being rejected because I have prescription coverage I received a call that my Revlimid would be delivered tomorrow. I can only assume that Dr. Goldman followed through with Celgene to confirm that my insurance was no longer covering it. So after a 6 week vacation I will resume my Revlimid tomorrow. Time to resume fighting the beast.

My cousin Larry and his wife Gail came up from Tennessee to visit yesterday. We had a nice visit with them and Uncle Bob, Aunt Bea and Sylvia. After lunch we went to visit Aunt Thelma in Rehab.

Thursday, September 06, 2007

Good News.....
I just returned from Dr. Goldman's office and he said my serum light chain results had improved dramatically and were now in normal range. Better yet for me , when I told him if he needed to do a bone marrow biopsy I would like it before the end of Nov. when I lose my St. John insurance. He said with my good lab results I didn't need one.
Now for the bad news, my insurance decided after 6 months they were no longer covering my Revlimid. If I wanted it I would have to pay for it myself at over $6000 a month. I filled out a form to see if Celgene would give it to me through a special program they have. So please pray they will give it to me and soon.
Sorry that it took so long for me to post but my internet connection has been out ever since we had a severe thunderstorm here Aug. 24th. I had Comcast out here twice and they were unable to get me connected to my main computer. Finally I talked to a great tech on the phone who got me connected to my laptop and told me how to use my wireless connection without being hooked up to a computer. She thinks my ethernet card may have been damaged during the storm. Unfortunately the ethernet card appears to be connected to my motherboard. I decided to get a wireless connection for my computer as we plan on going wireless soon. Oakland County will be offering free wireless to everyone sometime in 2008, as soon as they finish the connections.