Wednesday, April 28, 2010

"My joy was as exceeding as was my pain..."

I can see! I should have written sooner, but I have been in such awe of life that I have not made time to write on this blog. I have been looking at and reading anything I can; books, labels, road signs, tags, and quilts!

About two weeks ago I went in for my regularly scheduled appt. to the Dr. He decided to not remove sutures for awhile, but give me the gift of sight as I heal. I have glasses, and a very strange prescription. In fact, on the prescription, the Dr. wrote, "This is not a joke." to the lab technicians who would prepare the glasses. My right eye sees things tall and skinny. My left eye sees this wide and fat, completely opposite of each other. So, it took awhile for both of my eyes to adjust and work together, but the perseverance paid off. I can see 20/30 in both eyes. I have not seen this well in years!

I do not know how long this prescription will be current. There are still seven sutures in my left eye, and nine in my right eye. Eventually, they will all need to come out, and as they are removed, my vision will change each time, thus needing new prescriptions. But for now, life is so good!

I am amazed at the things I have missed! Dirt and dust in my house, veins on a leaf, light and dark shadows in the trees, sparkles in the sidewalk. The other morning I was laying on the carpet in the sun reading my scriptures (I can read again!!!!) watching a tiny bug crawl up and down on the various strands of carpet fibers. I was fascinated and humbled to say the least.

How much I take things for granted. What an amazing blessing to have something restored to you that was lost! I know that all of your prayers have made a big difference in my life. I know that God is aware of all we have been through, and will continue to carry our family through this.

I am truly humbled by the ability to regain my vision. All though not perfect, and the process not yet finished, even to see for a day or two, just knowing vision is around the corner makes me cry. I have shed so many tears of joy over the last two weeks. I am so thankful to my surgeon, Dr. Mark Mifflin at Moran Eye Center in Salt Lake City. What a gift he has given me.

I would encourage all of us to take a moment and look at the things God has given us in our lives. They may not be perfect, be it our bodies, our health, our home, our economic situation, but so many people can and do have it much worse.

And for my sake, look. Look around you and focus on little things, like words, or nature, or ....even dirt on the floor, and say a prayer of thanksgiving that you are able to see it.

Life truly is good, and so worth living....

I am hoping to get back to work sometime soon...

Friday, February 12, 2010

(On a side note...)

I forgot to add that I had to quit my job at OU Children's Hospital in Oklahoma City. It was a very painful decision, and I shed many tears over it. I loved my job in pediatrics. I just was not safe to care for my patients. I will continue to have faith in my healing, that it will be perfect in time, and go back into nursing when I an safely able. In the mean time, I am enjoying the calm that I feel at home as I attend to my most important job as a mom and as a wife. It has been a traumatic six months, and I must use this time to rest up and enjoy the calm before the next storm hits....whatever and whenever that will be!

Update with removal

Hello. It has been awhile. I have been trying to heal...allthough difficult when you are a busy pesonality. I just returned from the Dr. on Tuesday night. He removed on average sixteen sutures from each eye. That leaves seven left in my left eye, and eight left in the right eye. My right eye can see a bit better, the left is about the same, but that should change in the next few weeks.

Oh! Guess what! I am published and didn't know about it until a facebooker emailed me some questions and pointed out the article to me. Hope you enjoy. Here is the link....

http://www.discoveryeye.org/news-and-events/newsletter.html

I will try to write more later. I just can't see well enough to get realy involved in a long letter. I can't do the spell check etc. and I am sure it looks a mess.

Monday, January 18, 2010

Miracles take time...and patience.

The holidays were great. It was very nice to get home after being gone for a month. The Dr. appt. before I left was great. I was given the OK to drive and also a note saying I can go back to work part time. I was excited to get back to normal.

I worked a two day shift just after getting back. I loved it! I so love being in the hospital. I don't know everything yet, but I love learning, and taking care of babies and children I worked with GREAT coworkers. I was excited to think about getting back into nursing.

Unfortunately my exciteent did not last. I came to realize that I was not safe to care for patients on my own, and had to terminate my contract at the Childnrens Hospital. I have shed many tears over this decision. I know it is what is best and safest for all involved, and I can be home with my children and focus on healing, bt I did so love taking care of sick children and their families. It made me feel like I was doing something worthwhile.

Now I will focus on doing worthwhile things in my own home again. My kids and husband have been withouut mom for awhile, so I will redouble my efforts to provide balance in our home while I heal.

I can see well when I put drops in my eyes, but the results are only for five minutes or so before the improved vision fades. My right eye is fair, I can make out big words if they are highly contrasted. The left eye still sees ghosting, but I have only one sutre that has been removed from it, so over time and continued suture removal, it should improve on the ghosting and vision.

My Dr. suggested I purchase some ove the counter glasses in different perscriptions to see if they help muy vision. I can't find a deffinate perscription that helps. So I am going without glasses for now.

My eyes having such improvement with drops led me to think the hot, dry air that is blowing through heating vents in my house and other buildings may be causing increased dryness. I am trying a humidifyer for increased moisture to see if that improves my vision.

I think overall, all is well. Dr. is happy with the progress, no sign of rejection, healling is doing fine. I am coming to realize that miracles sometimes take longer than one might want, but hope keeps me going. I am praying for increased patience.

Happy New Year

Sunday, December 27, 2009

Post Cornea Transplant Update

It has been since the 9th for my second cornea transplant, and since September 23 for my first cornea transplant. I am going to report.

The first (left) eye is recovering well! I have had one suture removed, and with correction the Dr. can get me seeing 20/40 or so. I do not have correction on the left eye yet, in that contacts will slow the healing.

The second eye also is recovering well. I had a suture that was leaking fluid from the inside of the cornea, which was causing the pressure to be very low. I was taking drops to help with the pressure, and wore a non prescription soft lens over the top of the cornea to assist in closing off the leak. In a few days, that leak healed over, and I experienced extreme vertigo. This, looking back now, was probably the pressure in my eye increasing. At the one week post op appt. the pressure was quite high, but the Dr. was not alarmed. He prescribed two different eye drops to help with the pressure. Four days later, the pressure check was back to normal, and the soft lens was removed. This was bitter sweet. The soft lens was covering up a knot in one of the sutures, and now that it was exposed was causing it to rub the inside of my eyelid raw. Very painful. The drops I had to use on the raw skin burned and stung terribly. The Dr. said the skin would heal over the top of the knot in a bit and it would be better. It took about a week or so, and now the skin is nicely covering the knot, and the pain has decreased. It is blurry in the right eye, but I can read large words with high contrasting background.

So, I continue to try to be patient and keep my eyes closed as much as possible (which is VERY difficult with all of the pressure I put on myself to be healed NOW, not later.) I have had a hard time resting this last week with the holidays and being with my husband and children again. I try to sleep a lot, which I have found really helps. I get very tired, especially as I strain my eyes through the day to try to see. Also, growing new tissue does take effort on the body's part. I try to take a nap daily in the afternoon and give my eyes a rest. This also helps. The Dr. said that they eye lid closed over the eye acts as a natural protection and barrier, and the more it is closed the faster it will heal. I also try to constantly put preservative free liquid tear drops in my eye, and several times a day I put a nighttime over the counter ointment in my eye to help lubricate it. I have noticed when I DO NOT keep a great deal of lubrication on my eye, the mapping and results at my follow up appts. are not as positive.

What are my thoughts and feelings post surgery for any one considering transplant: Do one eye at a time and let the first transplant heal to the point of being able to see well out of it BEFORE doing surgery on the second eye. The reason I did the surgery so quickly was that I needed to get both surgeries on this years deductible, AND because I was able to take time off of my life. I have had help from my family and neighbors to drive me around, drive me to appts. and I was able to take a medical leave from my job at the hospital. I would NOT recommend doing both eyes quickly if you depend greatly on your eyes to do your job or function at 20/40 (which is legal driving sight). Get the first eye to the point of correction to at least 20/40 and able to drive/see out of one eye before considering the second eye.

I also would recommend resting as much as possible, which if you have a job may be difficult to do. The more the eye is closed, the faster it heals. Taking a medical leave for several weeks would be ideal.

This is the first week I have been able to really see well enough to read larger print with the left eye. It has been three months. The Dr. said it would be at least three months before the eye would be stable enough to put correction on the eye. Every time sutures are removed, the vision will change, and the correction will change. I now see why the healing process takes six months to a year.

In summary, if you must depend on your eyes (Ha! who doesn't!) one eye a year is what I would recommend. If you have people to take care of you and drive you (and CONSTANTLY remind you to rest and stop using your eyes, and stop reading your email, and stop quilting, and etc...(thanks everyone, and family, I love you! ) then you can do the eyes quicker, but, you may not be able to drive for a few months.

I better end now. My sister just called and asked what I was doing and when I planned on going to bed so I can rest my eyes :) that means I must be done for the night....(and no one knows I am up typing right now, so that will get me in trouble as soon as I post!) Please don't get me wrong, I am so thankful for ALL of you who want me to heal and do everything you can to help enable that. I truly am grateful. I love you. ash

Wednesday, December 23, 2009

My Personal Testimony and Declaration

Through continued obedience, prayer and scripture study I have come to know that Heavenly Father supports me and carries me through my trials. I have come to know as I submit myself unto Him, that I am His daughter, that I have great potential, even greater than I can comprehend and understand at this time. I know that through constant hard work, determination, perseverance, and positive thinking, trials are manageable when we include our Father and Savior in our experiences.
The scriptures are true. The Book of Mormon and Bible work together to testify of God’s purpose. They give me strength and peace as I read them. The words bring peace and love into our home. If we do not read our scriptures as a family consistently, there is contention and unkindness. The spirit of revelation can flow through scripture reading.
I know the prophet today and leaders of our church speak God’s words and through following them we will be safe during this troubled time of existence on the earth. I know that we need not fear if we stay close to their council. I know all the prophets from the beginning of time talked with God and gave instruction to his children to help them in life. I also believe that the prophet Joseph Smith restored Christ’s church in these latter days.
I know this is Jesus Christ’s true church on the earth and it truly was restored, because I have asked God, and the Holy Ghost has born witness to me. The teachings, ordinances and simplicity of the gospel make me happy. As I continue to follow these teachings and truths, they guide me safely back home to my Heavenly Father and this earthy life is joyful, wonderful, peaceful, full of purpose and rewarding.
I know we are to be a tool in God’s hands. He knows the worries, fears, pain and sorrow His children experience One favorite verse in the hymn book is, “Who am I to judge another when I walk imperfectly? In the quiet heart is hidden, sorrow that I cannot see.” (Lord, I Would Follow Thee). I have experienced this myself…sorrow that only I comprehend. It helps me to love others around me knowing I might be able to do or say something to lift another’s burden. I know that the Lord places us on the earth to help each other return back to live together with him.
I know that balance is a key to life. There is time for all things, but not often and the same time. The Lord will guide us and help us balance our priorities if we put Him first in all we do. I have found if I put Him first, the important things always get accomplished, and the unimportant tasks seem to fall away from the priority, stress and importance I previously placed upon them
I know who I am and where I am going in life. Life has and will continue to get rocky and difficult, but I know if I align myself with my Savior and Heavenly Father through prayer, obedience, scripture study, patience, faith, confidence, humility and positive thoughts about myself and others, I will get through my trials, learn from them what I need to learn and prepare for eternal life with Heavenly Father.

This is a portion of my testimony.

Tuesday, December 8, 2009

Day before my last cornea transplant

I was reading in the Ensign, a magazine that my church puts out monthly, and there was an article by Henry B. Eyring who quoted a scripture from Mosiah (4:20-22). It reads:

"And now, if God, who has created you, on whom you are dependant for you lives and for all that ye have and are, doth grant unto you whatsoever ye ask that is right, in faith, believing that ye shall receive, O then, how ye ought to impart of the substance that ye have one to another.

"And if ye judge the man who putteth up his petition to you for your substance that he perish not, and condemn him, how much more just will be your condemnation for withholding your substance, which doth not belong to you but to God, to whom also your life belongeth, and yet ye put up not petition nor repent of the thing which thou hast done.

The article also talks about how God knows our needs, and the needs of others, and depends upon us to fulfill others needs. We tend to respond more at Christmas time because we have the Spirit of Christ with us stronger at this time of year as we focus on his birth and life.

I was pondering these words. I have asked for many things in faith, more recently for my vision to be restored knowing that God will grant that unto me. I also thought about how I have told Him that I will be a tool in His hands with my restored vision. I realized that I don't have to be a tool when my vision is corrected, but I can be a tool now as I heal.

One of many ways I can be a tool, I realize through reading this scripture (and many others), is that I can serve others in my own way, even with limited vision, and allow others to serve me.

I can be positive, face the future with faith and encourage others to do the same, to see life with the glass "half full" instead of "half empty". My lack of vision tempts me to get discouraged and feel self pity. But as I count my blessings and have faith that all will work out in time (and exercise patience) I can be positive through this trial, and hopefully build others around me.

As this scripture states, I must impart my substance to others, which I try to do, and find great joy in doing. But I also realized that this scripture, if turned around in the opposite position, also applies to others serving me. As we serve others, we receive joy, and blessings, and feel God's Spirit close to us. How selfish of me to unconsciously just want that for myself, and not allow others to feel that same gift. By allowing others to serve and take care of me and my family right now, in this time of my trial, I allow others to feel the joy that comes from sacrifice and service. By my allowing others to serve me, I find joy in knowing they receive happiness and increased blessings and spirituality through their love and desire to sacrifice.

So, to sum up this long thought, there have been many who have wanted to be there for me, to help me and my family. At times, well, quite often, I have felt guilty, refused help, done things on my own, and tried to not inconvenience you as you have desired to be of service. Shame on me for refusing you and denying you the opportunity to grow and feel blessed. I will work on that going forward. I will allow others to help me, and I will accept these desires graciously and thankfully, knowing that I can not be the only one to receive blessings through my service to others, but allow those who desire to receive in service to me.

I go in tomorrow early morning to have my second cornea transplant. I will not be able to see tomorrow, and I do not know when I will receive correction for my left eye. I am not going to get down on myself or life. I am going to be strong and know that it is all in the name of progress. In time, I will see again, and this will allow me to have more compassion and understanding to those who struggle with this disease, with those who have lost their vision, and with those who feel that they inconvenience others through their times of trial and healing.

I love you all. Thank you for your kind words, love and prayers. They mean a great deal to me and give me strength.

My sister was very inspired and said to not think of tomorrow as the day I lose my sight, but the day that I start to see again, without all the pain, headaches, and stress of wearing my hard lenses over my distorted cornea. Thank you to her for putting my mind in the right focus.

Tomorrow I start again....and I have a bright, beautiful, and eventually clear vision future ahead.

Forgive my random thoughts and poor sentence structure. I am using my 20/60 right eye to type. I will try to post soon, but will be healing and do not know when I will be able to see well enough to type.