This has been a long and exhausting week. Abby went in on Jan. 30th for her overnight chemo. Although she spiked a fever while we were there, they drew cultures and sent her home. After that, she was not able to tolerate her feeds at all. We ended back in the hospital from Tuesday until Thursday making sure that her new GJ tube, which was also replaced on Friday, was in the correct position. We decided she was just super sick from the chemo and she went home Thursday, but not before trying to spike another fever. On Friday afternoon, she finally went up to 102 and so it was back to the hospital less than 24 hours after leaving. Her cultures never grew anything, so we came back home late last night. I'm guessing that she had some sort of infection in her trach (although they didn't culture it) because she had a lot of changes to her secretions.
Abby was scheduled for scans on Friday, but they went ahead and did them Thursday. We got the great news Friday that she is still NED! Unfortunately, we also learned that her oncologist wants to add another two rounds (six weeks) of chemo because he didn't add one of the chemos until after her big surgery and he wants to make sure she gets the full amount of it. We were a little disappointed because her original end date would have allowed us to go home for Easter and now she won't be finished until the middle of May. But we are so grateful that she is still cancer-free and will do anything to keep it that way.