Hello dear readers and prayer warriors!
We are staying busy and having a lot of fun! Most of the time, you can find us in a ball gym. Either at practice or at a game. It's a good thing we like basketball, because just this week alone we have spent 5 nights in the gym. The girls love to play and we love to watch!
Jedidiah is their #1 fan! Don't you just love his "Justin Beiber" hair!!!
Remember that my two sisters and I were pregnant at the same time? Look at the "triplets" cheering on Reagon!
On Wednesday, Jedidiah had another appt at ACH for his check up. He doesn't cry now as we enter the hospital, even though he knows his port is going to be flushed. He is such a big boy.
We were happy to get to spend some time with Christopher. Over the Christmas holiday, Christopher was life flighted to ACH and spent the entire week in ICU. He is better now and we are so very thankful! We are planning a big camping trip this summer with him and his family. My grandparents own a cabin on the river and we are going to have a weekend get-away and teach Christopher how to fish and canoe the river. He is going to have a blast!
As we were getting ready to leave, we hugged Christopher and he said "I can't wait to spend the weekend with you all. Can we stay a week instead?" lol
Then he turned to his mom and said "what if I get sick and die. then I can't go camping."
My heart broke in two. I wanted to just break down right there but thankfully I held it together. At such a young age (9), he knows the severity of his bone cancer. He knows that his relapse is a major thing and that the cancer has moved to his lungs. I pray every single night that this camping trip will be one of many for Christopher and that one day he and Jed can camp with their kids and tell them all about this journey of childhood cancer and how it brought our families together. What a deep bond the families in our unit form. A bond that cancer cannot destroy!
Stepping back into the clinic after a six week break was a bit of a reality check. It is easy to distance yourself from it all when you aren't at the clinic on a weekly basis. But the reality is, even though we are not there every Wednesday now, the clinic is still full. On Wednesday. On Monday. On every single day of the week. You can walk the floor of our cancer unit any day of the week and find children fighting an awful battle! It is not an easy place to be, but it is very place the Lord chose to use to open my eyes. Open my eyes to a brand new ministry for me, open my eyes to so many needs we never knew before. I couldn't help but shed a couple tears as we walked past the rooms full of pale children with bald heads. It seems like an eternity ago that we were in the rooms and yet, it is hard to remember the "before cancer" time in our life. I get emotional watching Jed run around the clinic as I catch a glimpse of a parent in a nearby room watching him. I know they are thinking "please God..let my child run and play in the halls soon!!" The moms almost always mention Jed's long hair. I know they are hoping to see the same in their own child one day. With each set of scans, we as parents in the waiting room hold our breath. As the child's name is called and the parents go back for the results, we all just sit and wait. Almost as if we are waiting on the results of our own scans. When they finally emerge, we rejoice with the clean scan results and cry with each relapse. Through our hugs and tears after the bad scans, I know each of us are quietly begging God to "not let this be my child next". At times, it's a nightmare. We could never make it without a gracious God who walks along beside us. Sometimes carrying us, even still.
So many of my "Wednesday kids" are struggling right now and are in need of your prayers.
Baby Jaxon had a very important PET scan this week. We are waiting on results. Please pray the tumors from relapse are gone and the only thing left is scar tissue...or nothing at all!
Pray that the new chemo will begin working for Christopher. He relapsed after only 6 short weeks of remission and is now on a high dose chemo.
Pray for Maddie. She has had such a rough fight with ALL Leukemia. I would love to see her in remission and cancer free!
Thank you all so much for staying faithful to pray alongside us.
Jedidiah is scheduled to scan again on Feb 23rd. With each set of scans, our anxiety level rises but after each set of clean scans, we move closer and closer to a "cancer free" future!!
Please say a prayer for our daughter, Kendall. She was diagnosed with NF1 almost 5 years ago and she has a dr appt at ACH tomorrow.
Surely God is my salvation; I will trust and not be afraid. The LORD is my strength and my song; he has become my salvation. - Isaiah 12:2





