Sunday, August 31, 2008

6 months old!



I cannot even begin to tell you how depressing it is that Crew is already 6 months old!  He has gotten so big way too quick.  He is still the best baby... never cries and is constantly smiling.  He already thinks that he is a big boy and tries to keep up with his big brothers and is into everything.--(yes, he is crawling for lack of a better word.)  We have caught him trying to go down the stairs and yesterday, he even tried to crawl into the pool.  I think that we may be in trouble considering he just barely turned 6 months.  Jake and Cole don't really know what to think of it yet since he is on top of them if they are playing anywhere near the ground.  Jake told me the other day, he doesn't think we should have another baby... "I really love Crew, mom, but he just eats all my stuff all the time!"  Actually pretty funny.  Anyways--we love this kid like crazy... he has been so much fun and has been a huge bright spot in our family these last few months.

Tuesday, August 26, 2008

Delayed Intensification

Jake's counts came back high enough to begin phase four of his chemo treatments today.  We cleared it with an ANC count of a whopping 900!  Much higher than we have been.  You just never know where the kids' going to be.  So it was up to Primary's for a fun filled day.  He had a back poke first thing this morning, which was actually quite interesting.  We were able to watch it because they did  not put him completely under this week, they only sedated him.  It was crazy to watch him be awake, but not at all aware of what is going on around him.  Almost a little creepy.  You could ask him questions and he would answer, but it was like he was not there.  As he woke up, his speech was slurred and he was so funny to listen to tell Jeff he has four heads and say "mommy your sooo funny." for no reason at all.  His spinal fluid came back clean...no leukemia cells still!  Yeah!  Always a relief to find out that news.  Jake also had an iv push today.  He had Vincristine and a new med (have to look up the name).  This new one is also the major one that causes mouth sores in some kids.  Just one more side effect that we get to watch for.  But, all in all, it went as smoothly as can be.  Steriods begin today also--our favorite thing.  We should start seeing the side effects in about 7-10 days of all of these new medications.  We keep thinking that there is no way it can be as bad as the last two months have been.  It will be a fun ride!!!  

It has been quite interesting to see the difference in how Jake handles things than he did in the beginning.  He has been asking for the last week or so if we can go sleep up in the hospital in the comfy bed and "make my dad's back hurt" (haha)... and he wanted to play ALL day in the clinic today.  (he was very excited to go when he woke up this morning)  In fact, when we were done today, he did not want to leave.  A slight change in just over four months of shots and back pokes and more medicine than you can imagine.  (Our cupboard resembles a small pharmacy)  Jeff would like to start some kind of support group or something for parents who's children are newly diagnosed.  Doctors can give you only so much information about the disease, but not really what it is like when you go home.  It would have been nice to know that it does get better and the kid's do get used to things.  It is in the thinking stages, but I am sure that he will pull something together.  I think it could be a great asset to those parents.  I know that it would have been for us!  

Tuesday, August 19, 2008

camping

We took full advantage of this last week, since Jake was supposed to start delayed intensification phase for chemo yesterday, so we went camping with the Nelson family!  It was so fun... the boys loved it and we actually slept GREAT, due to the fact that Jeff went and bought a blow up mattress as we were walking out the door.  Now, that is what I call camping. 

A little update on Jakers... he is doing great and was supposed to start his next phase yesterday, but his counts were too low.  His ANC needed to be at 750 and it is only at 510.  So, another week of waiting, which on the positive side, we do have one more week to relax and enjoy a semi-normal little boy, but it just delays the inevitable.  That's okay though!  We are enjoying every normal second that we can get and will take full advantage this week as he is off TPN and all antibiotics, which means no more port accessed 24 hours a day!  It is great.



Thursday, August 14, 2008

summer days...

Here are a few pictures from the last couple of weeks that I am just now getting around to blogging...

One of our nights in the hospital.  (I should have taken a picture of Jeff sleeping... poor guy!  It is not too comfortable for him up there!)

This picture is for Jeff... it is a tribute to the bike that he so loved, and it is now gone.  

Crew has started on solids.  Can I just tell you how much I hate when this happens?  It is kind of a pain in the neck and so messy to have to feed them.  The kid is a chunky little thing... he LOVES food and wants to eat if he sees anyone else with food.  He tends to fake cough and reach to get what he wants.  Kinda funny.

Cole's FIRST day of preschool.  It is heaven.  (Am I a bad mom for saying that??--I can get so much done in those 2 little hours... I can only imagine what it will be like when Jakers starts school.)  Cole loves it and thinks that he is so big.  Yes, the tongue was out on the first day as he tends to do when he gets a little shy.   Just in case you were wondering, he has taken bear twice for show and tell.  (There have only been two show and tells so far.)

Monday, Jake was able to have his port de-accessed for a few hours, so we took advantage and went swimming.  It was nice to be able to get out and do something that Jake feels good at.  I think that it has been a little frustrating for him as he is always hooked up to an iv, so today was a  good day to spend some time outside and enjoy the summer!!

This one's for you mom.... hahahaha




Sunday, August 10, 2008

How's the ski?

I DON'T KNOW!!! My dad skiied on it but he only goes 34 mph while the big boys go 36 so it's not set up right for him. I haven't been able to go back and ski on it yet but i will!! Soon.

How's Jake?
AWESOME! While we were in the hospital last week they finally figured out he has had a virus in his intestines for the last 1.5 months and we got on the right anti-biotic and he is doing GREAT!! Fever is gone for the first time in over a month. No more bathroom breaks every 8 mins. He's eating great. He's gained 2 pounds in the last week! He even started walking again 4 days ago. He hadn't really walked in the last month or so. He is talking great and is a completely different kid than he was a week ago. He was really going in the wrong direction up until a week ago. We couldn't be more grateful for the thoughts and prayers.

I'm sure Heidi will have some pic's pretty soon of the boys. Cole started pre-school this last week. He loved it. He seems to be getting so big to me so fast! He cracks me up.

Tuesday, August 5, 2008

Motorcycles



Some of my buddies in the neighborhood are buying street bikes.  Heidi is, how do I say this, not being very supportive of me buying one.  My buddy Will let me borrow his and I talked Dave into taking a ride with me.  We had an "experience" and our relationship will never be the same.  Here are a few pics from our ride together.  

Monday, August 4, 2008

Breaking Dawn at midnight?

So I just have to say that 'yes' I am one of the big nerds that was so excited for this dang book to come out.  Love it.  In fact finished it already.  (Not that sitting in a hospital with nothing to do for three days helped at all or anything)  I loved it!  I went at midnight to get it (hence, the big nerd part).  I have to admit that it was my favorite part about the book (going at midnight I mean.)  I went with a bunch of girls in my neighborhood to Walmart at 11:30...had a book in hand by 11:45 and then had to stand in line until they opened up the registers at 12:01.  On to McDonalds for a coke where Karli decided to dump her drink all over everything and then sat in the car until 2:00 in the morning laughing our heads off.  It was great and something that we should definitely do more often!  The best part was that the Walmart employees had these Team Edward and Team Jake t-shirts on.  My friends decided that I needed the Team Jake shirt for MY Jake (huge Edward fan over here).  They had no more left, so they persuaded the manager of walmart to give me the one he was wearing by pulling the cancer card.  So now I even have a Team Jake t-shirt.  Thanks girlies...I owe you one!!!




Sunday, August 3, 2008

update...again!

On Friday Jake had a blood transfusion. They also took some blood and some of the tests came back positive for infection. Saturday morning we got a phone call to go back to the hospital and they'd have a bed waiting for us. That was nice of them! He has an infection in his line from his port, they think. So he is on two new antibiotics and is doing fine. The infection can be very dangerous if they don't get it taken care of. Also, if they can't take care of it with the antibiotics they might have to remove his port and give him a new one. Let's hope for the best. He still has a fever but hopefully they can get rid of that in the next little bit. We are hoping to go home on Wednesday...so if you have any good movies to suggest, I would enjoy that! Apparently there was a new book that came out the other day so Heidi enjoys coming up here so she can just sit and read! She went to Wal-Mart at midnight the other night to go get the next book in the vampire falls in love with some girl series. (I can't remember the name of it but I know you know which one I'm talking about!)
Still no ski. Hopefully tomorrow.