
If you watched
Oprah today, then you saw just a glimpse into the lives of autism and how it affects so many people worldwide. Kudos to Oprah for finally doing a show on something that needs to be noticed and shown great compassion for. I watched the show and I just have to say that after seeing it, I am so thankful for my little Riley!
Oprah had a panel of about five parents with children on the spectrum of Autism. Not one of them had any of the same things going on as Riley and that really goes to show you how wide the spectrum can be. They also discussed a documentary that shows some of the struggles in dealing with Autism. The documentary that Oprah is referring to is not one that I reccommend seeing. When I watched it, I was sick to my stomach for days. Yeah, it's real, but I saw no hope for the kids with autism or their parents. I saw single parents living in a prison 24/7 and very frustrated individuals. Let me say it again, I am so thankful for my little Riley!
Here are some of the points that I made while watching the show:
LostWe never "lost" Riley. By that I mean that he was never fully talking and attentive and then one day......nothing. He developed normally but his communication was never up to par. He did babble, though. I remember trying to get him to say "bean" for jelly bean at 15 months and he would look at me and struggle but could not say it. That would be my very first clue that something was wrong.
LovingRiley is VERY loving, to me especially. He hugs on me and will even say, "I love you" after I say it and I believe that he knows what that means. The hardest part is watching him with grandparents or family and him not responding the way that a "normal" three year old should. I know that this is hard for the family and it really breaks my heart for them. I think that sometimes Alan feels this way, too since he is more of a playmate to Riley than a caregiver.
TalkingIt took a long time for Riley to repeat things but now, at three, he will repeat and often come up with words of his own. He won't say "Mommy" and "Daddy" without us prompting him, but at least he says it. I feel that with lots more therapy, he will eventually be asking for things and communicating instead of dragging my arm to what he needs.
His SisterI feel for Kylie because she loves him so much and really wants him to play like a sibling should. I am really excited for her to go to Kindergarten because I am hoping that she will meet some playmates in our area and not rely on Riley so much. They do have their little games that they play and you can tell that he really thinks she's neat! These times mean so much to me and I often stop what I am doing just to watch the few minutes of brotherly/sisterly love.
StimmingThis is something that was really hard to watch a little over a year ago. Riley would just spin around and around and would not stop unless you made him. Now he flaps and plays with his hands but we really try to redirect him without making him really angry. I believe that he will always have some sort of stimming going on.
FrustrationRiley is really a pretty happy little boy. He does not want to share and that is definitely where most of the frustration lies. He is never just frustrated, either. There is always something behind it and he can communicate what the problem is pretty well.
SocializationRiley is not afraid of people. He won't go hide in a corner. If there are kids yelling and screaming, he will be right in the middle of them. He also likes to watch older kids. The other day, he threw a football with two older boys at Kylie's soccer practice. Of course, he will not sit in a circle and attend with other three year olds but that is what they are working on at school. Maybe someday.
Sleep HabitsRiley has normal sleep habits so far...I'm knocking on wood right now. He goes to bed at 8-8:30 and wakes up at 7-7:30 and will take a nap on some days. I really hope this doesn't change because I really need my sleep!
Eating HabitsI don't think that he has eaten a green vegetable in his life. He has nothing to do with fruit, he used to like bananas but doesn't anymore. He has recently started eating hot dog weinies and I am thrilled with that! Yogos, goldfish, fast food........Yeah, don't talk to me about your picky three year old that won't eat brussel sprouts!!!
So, that is just a glimspe into our lives. We have good days and bad. I am constantly keeping my eye on him and trying to teach him something every chance I get. It is exhausing and it is VERY expensive. The hardest is definitely going to church. Until we find a babysitter on Sunday mornings, we will not be sitting in the auditorium any longer. Another option is to find a church where special needs are met, but we love our church. Catch 22.
I could go on and on but for the first time in my life, I am trying to be positive about Riley's future and also be filled with hope. I have specific prayers for Riley and I really feel that this great responsibility was given to Alan and I for a reason. Maybe I prayed for patience too much. Or maybe He is making me stop and see the beauty in all things created. Whatever the reason, I am thankful for my little Riley!