At one point this morning, alone in an examination room at Kaiser, I looked up at the ceiling and asked my own personal Jesus, who looks like Fonzie and has a wicked sense of humor, "Are we filming some kind of screwball reality show here?"
The early morning had been a Keystone Kops routine. I dropped the crutches every time I put them down. The phone rang as I was in the back of the house. On a good day I can barely get to the phone to answer it before the answering machine kicks in. This morning I missed it. The message was from a nurse in podiatry at Kaiser, wanting to tell me about my x-ray results. I picked up one of the 3 digital house phones to call her back. I couldn't read the numbers. Couldn't even tell what main button to push to have it function as a phone instead of an intercom.
I tried to memorize the number as I dragged myself to the kitchen to try the phone there. I evidently jumbled the number in my mind during the trip because I got a "...this number has been disconnected" message. OK, I thought. Forget the phone, I'll talk to the nurse when I get there.
Then I noticed there was already a message on the phone. When I played it, I could barely hear a very faint voice at the other end. As if someone was being smothered by pillows. I turned it up full volume and put the speaker directly to my ear. I could catch my foot doctor's name, but couldn't discern what he was saying. The next message on the queue, an old one, blasted so loud it made the rocks in my head jumble around.
I decided it wasn't worth trying to hear the doctor's message, either, because I could talk to HIM when I got to my appointment, too.
It's always a challenge to figure out what to wear to an appointment. Is there going to be a blood test? If so, you don't want to wear long sleeves. I ended up wearing a loose sweater and some jeans with straight legs. I wore the huge boot the doctor had given me last time I saw him, which had been added to my collection of 6 or 7. Every time the foot doctor does anything to my foot, he wraps it and puts it in a boot. Each time the boot is bigger, heavier, and wider than the last. And it has more velcro. The doc likes gadgets. It was a challenge to drive, with the boot on my right foot. The velcro kept sticking to the carpet in the car. I have hand-operated brakes, though, so I just kept the boot on the accelerator and my hand on the brake handle.
Got to Kaiser in plenty of time. Did valet parking. The valet pushed me in a wheelchair to the opposite end of the building to the ortho dept. and I was taken in early to see the doctor.
He looked at my foot. It was still very swollen. He poked it a couple of times and asked if it hurt. It did. He asked if it had gotten better since last Friday, or worse. Better, I said. OK, he said, the x-rays don't show any broken bones. There are 2 things it could be - an infection or Charcot. An infection wouldn't get better by itself, so it must be Charcot.
Eeeny - meenie - miny - Charcot.
Instant diagnosis, no tests.
Now, at least a year ago I told this doctor that I thought something was wrong inside my feet, and asked if I might have Charcot. My cousin Nancy has it, and I've read a bit about it. He sneered at me then, like I'd asked him one of the 3 stupidest questions on the face of the earth.
So, on one hand, a diagnosis of Charcot was sweet revenge, and I have to admit I enjoy that sort of thing.
On the other hand, this diagnosis is not something you want to hear. It's a nasty, difficult disease that hangs over your head - well, no actually over your feet. Sometimes your feet are almost OK, and other times when the disease is active, you have to stay off the affected foot for long periods of time. Months even.
The doctor started listing the paraphernalia I'd have to accumulate. I already had most of it: a wheelchair, a walker.
Doc told his nurse to order me a Bledsoe Conformer Diabetic Boot. He said it would compress the foot to take down swelling, and keep the bones from moving around. He looked at my clothes and said to his nurse, "She'll have to go home and change her pants." This Bledsoe thing would evidently not work with the straight legs on my jeans. The nurse (I don't know what he'd do without her) suggested she could get me a pair of scrubs to put on. So she did.
A while later, the cast tech came in with something that looked like a Hydroboot. That's something they used to sell for race horses. You fill it with water and put the horse's entire leg in it, then turn it on and it blows massaging bubbles. I couldn't believe my eyes. It was beyond Frankenstein and Darth Vader. It went all the way to my knee. It was huge.
This boot has 6 velcro straps and 2 other velcro closures. It took both the tech guy and I to get it closed. The velcro straps kept sticking to each other, to my sweater, to the tech's clothes, to everything they touched. It was like an octopus with velcro arms.
We didn't get the straps very tight. I asked the tech guy if that was right...isn't this supposed to be a compression device? He didn't know, he'd never installed one before. He suggested the doc would tell me everything I needed to know, and left.
Sitting there in the baggy, ugly pants, with a totally bizarre device on my leg - that's when I looked to the ceiling for confirmation this day was a bad joke.
But no. The doc said I could take the boot off at night, if I thought I needed to. (Yes, I needed to. Even if I could sleep with that thing on, the cats would stick to all the velcro parts.)
I got pushed out to the front of the building in a wheelchair and the valet brought me my car. I knew I wouldn't actually be able to drive with the thing on, it covered the accelerator and 3/4 of the brake at the same time. I figured I'd use the hand controls. But there wasn't even room for the foot with the boot on it on the floor of the driver's side. I had to take it off. The valet and I both worked to get the boot off. It took at least 10 minutes. In the car, the velcro not only stuck to our clothes, it stuck to the carpet and the seat covers too.
I got to work. I put the boot back on. I wore my baggy pants and monster boot the rest of the afternoon. Then 2 friends helped take it off so I could drive home.
Left to right: regular foot, previously huge boot, new and improved Monster Boot.
I've decided what my purpose in life is. I'm here to be the designated person who accumulates medical doo doo. Misdiagnosis? Wrong prescription? Doctors from the funny farm? It's my job to live with these so the rest of you don't have to. That's OK, I can handle that, as long as it's not serious stuff and doesn't involve needles or cutting things off. I really think, though, that someone else should be the designated accumulator of cat poo. I shouldn't have to do everything.
Cousin Nancy, I'll be talking to you. It's interesting that this disease we both have isn't genetic. Maybe it's just the Pisces factor, we take it in the feet.