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Friday, September 9, 2011

Summer 2011 was a GREAT one!




Friday, August 12, 2011

August 9th 2011

Shriner's visit...just waiting for our turn.  Get to see the Dr. today! 
Alexis is wearing her Chiari Sister ribbon from Ms Vicky! 

Health update~

So after the surgery, Alexis lost at the minimum 10 pounds!  We just went to Shriner's the other day and she has gained back a total of 4 pounds.  Woooo hoooo!

I think she is about to have a growth spurt as she is finally starting to get her appetite back.  Only took almost 5 months.  

She is about 4'1" tall.  They say that if her spinal cord were straight she would be about 3 inches taller.  

braided bangs ;-)

Alexis' bangs finally getting long enough to braid out of her face! 

SUMMER 2011

It's been a very good summer...and a very well deserving summer.  Alexis has had such a difficult year and I was determined to make her summer a Fabulous one!  

We have a new outlook on life and are enjoying it to the fullest!  

We have done so much this summer.  And it has been a blast.  Alexis is looking forward to going back to school. 
I am as well.  It will be nice to get back to something a little more normal.  Hopefully, this year will go well. 


We had our visit with Shriner's the other day.   It went alright, I think the only part of her back that has improved was the lower curve. 
But I'm not sure. 
The XRAYS look the same to me.  



Alexis' best friend moved back to Korea.  :(

It was very difficult to go through as both of our family's became close!   The girls got along great!  It was a great summer.  They spent so much time together playing every day!  


Alexis will have the memories of having a best friend for a life time.  I told her that I had some best friends when I was her age, and we are still friends to this day!

They will remain friends forever.  



We put together a "Going away party for her"  Or should I say a "going away week".  It was well worth it and so much fun.   



Friday, June 24, 2011

Best Friends~~


Best friends ~ ~ ~
Alexis and Sunjeong get along very well.  They play nicely and the are fun to be around.  We will miss Sunjeong when she leaves back to Korea.  :(
She is so pleasant to have over which is great cause she is here all the time.  But I just love seeing the girls having fun.  
There is one other girl that they play with.  And even the 3 of them get along great.  Who says that 3 can't get along?!?!?!  These girls can.  

Sunday, June 12, 2011

June Physical Therapy~ getting back to the new Normal




June 10 2011




Monday, May 16, 2011

Scarletina

Scarletina

Scarletina is a rash caused by infection somewhere in the body (usually the throat but often other places) with the Group A beta-hemolytic Streptococcus germ. (Scarlet fever is the full blown syndrome of untreated Strep infection with a much worse rash.) There are many strains of Streptococcus germ; this is the one that causes this rash. The immune system forms antibodies that cross react with not only parts of the Strep germ that act as a toxin but also normal tissues in the blood vessels of the body. When this happens in the skin, the blood vessels are injured, dilate, and a characteristic red, sandpapery rash develops. It is often first noted in the underpants area - where the skin stays the warmest.
If you suspect this rash, even in a child with no complaint of sore throat, you should get medical attention for proper diagnosis and treatment with complete course of an antibiotic. Group A Strep infections carry a small but definite risk of further reaction with the heart (rheumatic fever), which can cause permanent damage to the heart valves, or with the kidneys, causing dangerously high blood pressure (acute glomerulonephritis), or with the brain, causing a bizarre movement disorder (chorea, pronounced like Korea). The scarletina rash is also something to watch out for in any child with chickenpox because it may indicate a secondary infection with this potentially bad-acting germ. Call your doctor right away if you see a scarletina rash with known or suspected chickenpox.
A week or two after the rash fades you may notice some peeling of the skin especially of the arms and chest, and perhaps even peeling of the fingers and toes if the rash was severe. This is normal and harmless.

Scarlet Fever....the worst Friday the 13th ever!






We are both getting tired of Dr.'s and hospitals!  I wish they were ALL on board with everything!  Instead of having to Educate them. 
At least we had a good ER Dr. Friday night. 

Friday, May 13, 2011

Scarlet Fever!

Scarlet Fever

12

Note: All information on KidsHealth® is for educational purposes only. For specific medical advice, diagnoses, and treatment, consult your doctor.
© 1995-2011 The Nemours Foundation. All rights reserved.

Tuesday, May 3, 2011

Alexis Suzanne sharing her beautiful smile & legs ;)




Alexis looking cute as can be in her little hat....and brace.  She won't wear any shirts over it cause she gets too hot in it.  Even when it is 36 degrees outside.  The hard plastic keeps her very warm.

Tonight we had snow and hail...yep, you heard me, it is May 2nd and it was doing this crazy weather. 
So, Alexis had to make me a sweet little dish...she walked in the room carrying this dish with hail and snow chunks and had her little iphone playing xmas music.  HAHAHA, she is so cute!
It was filled with candy!

She made it for Chris and I.  Love her!
And the last photo is of Alexis' leg xrays...showing how the chiari affected her leg lengths!  :(