Friday, May 29, 2015

Sunnier Days Ahead

Finally we had good news this week.

I had a second uterine surgery, a hysteroscopy, last week. There was retained placenta still in my uterus which was hiding behind a large polyp. After seeing the pictures from my procedure, I can see how this was missed during the D&C. How there was placenta in the top right corner of my uterus, where the lining is thin, is a mystery. Given the location of the retained placenta, it was not possible for my OB to remove it all. She left the necrotic tissue behind and only removed what was still receiving blood flow. If she would have been more aggressive, she would likely have perforated my uterus. I did not cry immediately after my D&C, but I did cry when I woke up in PACU after this procedure. I had mixed emotions. This second surgery meant that everything about this pregnancy was really and truly over. I also felt relief. I had been living a nightmare for the 8 weeks following the loss of my baby. I had weekly OB appointments and lab work. I ended up in the hospital over Mother's Day weekend with a uterine infection. I had many tests done to figure what exactly was going on with my uterus. It was impossible for me to move on. I was still living in the middle of all of the aftermath. 

My OB called me this week with all of the surgery results, First of all, my biopsy came back clean, The large polyp was benign. This was such a relief knowing my family history of uterine and ovarian cancer. My uterus was also not scarred like we thought it would be after having 3 D&C procedures. I don't have Asherman's Syndrome. Everything looked pretty good overall. I don't need a hysterectomy at this point like my OB worried I might. I still have the gift of future possibility in regards to fertility. Whether or not I use it doesn't matter to me today, it's just that I have the choice.

Liam had his post-op appointment from his heart surgery yesterday. They repeated the EKG. His PR interval has gotten faster, it's 96, anything below 100 is too fast. After his surgery his PR interval was 108. This could be just a normal variance. His very first EKG, his interval was 64, dangerously fast. His delta wave looked normal yesterday. So when you look at a normal delta wave, the slightly faster PR interval is not concerning in and of itself. His exam was normal, and his heart sounded great. There was no sound like his previous fixed split S2. Since his heart sounded normal we did not have to repeat the Echocardiogram. We are considering the fluid around his heart a preexisting normal amount of fluid. That said, Liam can stop taking his medication and does not need to see the Cardiologist until next year, unless something changes. What a miracle. Liam made it through the first 2 months post-op, which are the most critical, without his heart opening any new accessory pathways. We can officially say that surgery was a success. Great health news for the second time this week.

Did you hear that loud thump?? That was me closing, or rather slamming the book shut, on this chapter of my life. If there is one thing I have learned from the most stressful time of my life it's this: I can do hard things. It's funny how once I got through these turbulent trials, my first thought was, "That wasn't so bad". I hope that when I look back on this time of my life that I don't look back with just hindsight. I hope that I look back with a little bit of kindsight. I did the best that I could.

It's time to move on from all of this. Sunnier days lie ahead once again. I already feel sunshine in my soul for the first time in a long time.

Wednesday, May 6, 2015

Honest Not Noble

I have dusted off and started reading again a dear old friend, a book, called, "Gone Too Soon". I also attended BYU Women's Conference recently. I chose to attend some classes that dealt with topics such as grief, mourning, and trials. There is one thought that keeps ringing out from the book I am reading. The thought in the book was that we should write down our feelings as we work through the grief we experience when we lose a child. We should journal those thoughts openly and honestly, but not be noble. I thought that was key to be honest, but not noble. Of course there are lessons to be learned, miracles to be found, and the silver lining to be seen. While those things are true, if you can't be honest with yourself, then how can you ever really move on?

It's a rainy day today. I love rain, thunder, and lightning. Today that dark sky matched my mood. The rain matched my tears. I felt as if Heaven was weeping with me. I didn't want to get out of bed. I wanted to stay snuggled beneath my comforter. I got up and went through the motions. I made breakfast, fixed hair, signed school papers and got my children off to school. I faked my smile. I faked that happy mommy tone. I assured my kids that today was going to be a great day, even though I didn't believe it would be.

I feel like I have had some better days. I have had days that I haven't cried. I will count that as a win. I have had days that I have laughed so hard I snorted. I have had days where some amount of time passes and I feel like my old self.

However.... certain things make me feel like I have been punched in the stomach and have had the wind knocked right out of me. When people make stupid and insensitive comments... that's the worst. These are some of my "favorites" and I promise they have all actually been said to me:

  1. You know you already have 5 kids right? 
  2. Do you feel guilty? You didn't seem excited about your pregnancy because I never saw you post about it on Facebook.
  3. There was probably something really wrong with your baby. You guys already have a lot of medical issues. Just think of all the appointments to Primary Children's Hospital you have saved yourself.
  4. You seem sad. Should you be on some type of medication to fix that?
  5. At least you have more kids waiting for you in the next life, I don't.
When a friend told me that she is trying to get pregnant I felt as if I had been totally deflated, like when air from a balloon departs in one big gush. It's not that I'm not excited for her, I am. But I think to myself that was me and it didn't work out. I am jealous that this other person is not jaded because nothing has ever gone wrong with trying to conceive, ability to maintain a pregnancy, and her kids are all perfectly healthy. I crave that innocence. I wish I was none the wiser and believed that what I want will happen when I want it to happen.

When I see several neighborhood ladies walking around with thir cute little bellies, I think that should be me. I would have been halfway through my pregnancy now. Halfway to holding my precious baby. As these pregnant women complain about being sick, tired, uncomfortable, or that this is a trial for them because it was a "surprise" pregnancy, I get irritated. I think, do you even know how lucky you are? Do you know there are thousands of women praying for your "trial"? I think that if your biggest challenge to date is a surprise pregnancy at 40, then may everyone in the world be so fortunate.

I still have hCG almost 6 weeks after my D&C. Without getting into all of the details, the bottom line is that my body still thinks it is pregnant. I have been pregnant all year whether with child or hormonally speaking, all year with nothing to show for it. Nothing. My belly had started to round and pop out. Well I guess it still looks that way because someone told me last week that I have a "pregnant belly". Yes, I do and thanks for pointing that out, as if I wasn't already painfully aware of that. Bills have come in for doctor visits, ultrasounds, lab work, and ultimately a surgery that delivered my baby. I am paying for a baby that I never even held. It makes my heart ache.

My arms ache to hold a baby. The other night I woke up in a cold sweat when I swear I heard a baby crying, only to find that obviously there was no baby. We went out to dinner as a family last night. We sat down at a table with 7 chairs and I was telling my husband that we needed 1 more chair so we could all fit around the table. He looked so confused, but I was adamant. And then to my horror I realized I was counting for a family of 8 because I still feel like we have 6 kids. In the deepest level of my subconscious I am still looking for that missing child. As we strolled through a Tulip Festival I saw two ducks walking with their 6 ducklings. I suppose you notice what you want to, but 6 is the number I see everywhere around me.

I don't know what to do going forward. My maternity clothes are packed up and the baby stuff is put away. Do I get rid of it all? I sometimes want to string up the infant car seat and whack it like a pinata. Sadness is real with grief, but so is anger.  When does it get easier? When will my body get the message that there is no baby and get rid of this pregnancy hormone? When will I stop thinking that I have 6 kids when I only have 5?