I have been lax in my writing lately because I've been so preoccupied with things I did not want to write about. However, I've been feeling lately that I should write about them because it is what's happening in our family right now. So, here goes...
On March 21st, I awoke around 4am with intense pain on the right side of my upper abdomen that was radiating through my entire chest. I thought I was either having a heart attack or throwing a blood clot (I had a sharp pain the previous couple of days in my right leg, but that was gone and replaced by the pain in my chest). I could barely breathe or walk. I told Shawn what was going on and he woke up shockingly fast. (I used to say the man would perish should the house ever catch on fire because he is so impossible to wake up.) In almost no time, he had called my mother to come watch the children, gotten himself dressed and put me in the car to go to the emergency room.
Upon arrival to the emergency room, they ran a full series of tests: EKG, blood tests, urinalysis, ultrasound, chest x-ray and CT Scan. The CT Scan, I was told, finally revealed the problem... I had a severe blockage in my large intestine. I was also told that my urinalysis was clear, that my blood pressure was elevated (due to the pain) and that my blood sugar and white blood cell count was elevated. They believe the white blood cell count to be high because I also had a small amount of fluid in my lungs and diagnosed me with pneumonia. I hadn't been coughing for the first time in months (I had been fighting a cold or something since Thanksgiving), but I believed them and took the prescribed antibiotics.
On April 3rd, we had an unusually cool and breezy day, so I opened most of the windows in the house. I was sitting upstairs in my office at my desk (just as I am now). Suddenly, I felt as though I had swallowed a bug (though I hadn't). I started coughing and coughing. The coughing became worse and worse and suddenly I was sick again. On April 7th, I had to report for jury duty downtown. So I went, hoping that I would get excused, but I didn't right away. I wanted to perform my civil duty, so I tried to suffer in silence. But, the judge could see what was going on and I was excused.
Feeling guilty about being excused from jury duty for being sick, I decided I had better go back to the doctor and get checked out... again. So, I went to the doctor the next day. I mentioned to him that I felt it was odd that I should be coughing and sick again so quickly after finishing antibiotics (just 1.5 weeks). He asked me who had prescribed me antibiotics because he had no report of it. I told him I had been at the hospital and why and that I was surprised that they had not notified him of it. He told me that they never do, so he looked it up on his computer and saw all of the reports. I had no idea the shock I was about to be handed.
He said, "You were very sick." Then asked if they had told me about everything that was going on. I told him what they did tell me, which, it turns out, was about half of the story of what was going on. Not only did I have a blocked large intestine, and a minimal amount of fluid on my lungs which probably did not require antibiotics as treatment... I also had a kidney stone, blood in my urine (COMPLETE OPPOSITE OF WHAT I WAS TOLD ABOUT MY URINALYSIS!!!) and the CT Scan showed that I had a 1.3cm mass on my kidney. WHAT???? He described it as being about the size of a small gumball.
My doctor immediately said to not worry because it could be simply a cyst - which are very common and can come or go. He also said it was even likely that I had moved or breathed wrong and caused the spot to show up. When I asked why they didn't say something to me about it when I was in the emergency room, he told me that it was probably because I didn't complain of pain on that same side (but I had - come to find out) and that the ER staff doesn't actually care about you unless you are dying on the table in front of them. Nice. Makes me want to punch something.
So, he gave me an order to have an MRI done at the beginning of June to see if it had grown, shrunk or disappeared. Naturally, I was hoping that it would have disappeared. I tried not to worry, but panic set in and it was overwhelming. I asked Shawn to give me a priesthood blessing and he did. After that, I didn't worry about it again until after I had the MRI done. It has to have been one of the most powerful and spiritual experiences I have had with my husband and I am so grateful for the comfort and peace I immediately felt and continued to feel.
On June 10th, I had the MRI done. It was horrible. I guess I didn't realize just how claustrophobic I really am. Of course, when you are facing your own mortality at the same time, it's a much more harrowing experience. I had to nag quite a bit to get the results back from my doctor - I was a ball of nerves and had to know. When my doctor called, I had hoped that I had worried about it enough that it would turn out to be nothing. But it was something. He said that because of it's coloring, density, and edges that it wasn't good - and that they rate these things on a scale from one to five (as to whether or not they are cancer) and that my "number is very high", but wouldn't give me a number. He said I needed to see a urologist and have it removed, not biopsied, removed. He said he would submit the referral and that the urologist's office would call me to make an appointment.
Two work days later, I received a call and had an appointment. Upon further investigation, I found out that the urologist I was going to see was not favorably received by his patients. I felt that I needed to be comfortable in the care of the doctor operating on me. My previous three operations were performed by my OB whom I know and love and completely safe and secure in his care. So, I called a friend who had experienced this same thing and received a wealth of information. She told me that she had seen the doctor that I was scheduled to meet with and that I should switch to her doctor - who happened to be in the same practice. So I switched. And I decided to look up and see just what my MRI results showed. The mass was classified as a "Bosniak 4 Lesion". So, I looked that up and found out that a Bosniak 4 Lesion is defined as 100% malignant. So, it's cancer. There we have it.
Two weeks ago, Shawn and I met with the urologist. Immediately, I felt that he was exactly who should take care of this for me. We all spoke very easily with one another. He answered my list of questions, kindly and respectfully. He said that the main thing he wanted me to go home with was that this surgery was curative. Afterward, I would no longer have cancer. He said that he thought the surgery could be done laparoscopically, and that he would only need to remove about half of the kidney. However, the main objective is to make sure that at the end of the surgery I am cancer free. If they have to cut me open or remove the entire kidney to make sure that all the cancer is gone, they will. There are many other details, but I grow tired of the details.
So now, we wait. My surgery is scheduled for three weeks from today. I will be in the hospital for a few days and then will need to recuperate for a few weeks. Thankfully, as of right now, I feel completely fine. I've been a little bit more tired lately, but that's my only possible symptom. I'm looking forward to all of this being completely behind me. I've learned a lot. Some good things, some bad... mostly good. I've learned that my ward family - though I still feel rather new in the ward (even though I'm not) - is more wonderful than I knew. The outpouring of love, concern, prayers and support has been overwhelming and I am profoundly grateful for it. I've learned that we have to ask the right questions when it comes to our medical care, or else we won't be given the answers. We also need to get copies of all of our medical records and lab reports and be prepared to be our own advocates when it comes to our medical care.
I feel like I've grown so much in the past few months - and the age probably shows in the wrinkles on my face. But I am grateful for the series of events that led me to this discovery. I truly felt that I was guided to get this little gumball found. I know that the surgery and recovery time won't be entirely pleasant, but I am grateful that it will all be over soon enough.