I'm just going to start writing about Rheese. I don't know where it will take me or what stories I will end up telling but I hope that you will be able to know a little bit more about our one in million boy. I will probably jump around quite a bit. I hope that you will come back to see what's new because I will continue to add more stories. And trust me, with Rheese, there are a lot of stories. I am so proud to be his mom. I was given the opportunity to raise this choice spirit of our Heavenly Father for 11 years. I don't know what I did in the pre-existence to deserve him, but I'm glad that I did.

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Wednesday, November 16, 2011

Hallmark

Last Friday, November 11, 2011, I went to the Hallmark Store to find a Christmas ornament for someone. While I was there I found this ornament:

I fell in love with it immediately because Goofy is playing the saxophone. I also found it on the 8th month anniversary of Rheese's return to Heavenly Father. I knew it was Rheese telling me to smile and think happy thoughts. I wanted it but it was a $30 ornament. I took a picture and sent it to a few people and my sister in Idaho and my parents wanted to help me get it, so it came home with me : ). When I was checking out I told the cashier about the significance of Goofy playing the sax and Rheese and about how he passed away and that it was the 8th month anniversary. We talked for a bit and she told me that she'd keep me in her prayers. She seemed genuinely touched and really seemed to care. She then told me that I needed a special magic cord for the ornament to work but they were out so she took my name and number so they could call when it came in. I got the call yesterday that it was in and went in today to pick it up. I was so surprised when I gave them my name and they gave me a gift bag with the magic cord and card in return. She told me it was from the cashier from the other day. Here is what the card said:


Dear Niki,

When I rang up your ornament when you were last here in Hallmark, and you shared with me about your son, Rheese, my heart went out to you. I've lost many family members- but your heartache is larger than I can imagine. Things happen in life that we cannot understand, yet we are left here to "keep going". I admire you so very much- for "keeping going" for your other children. We go through life never expecting something like what you are going through. I do not belive in closure, your Rheese will always be fresh in your mind- close in your heart- always your beautiful son. I know for sure he reaches out to you from above. Know that you will continue to be in my prayers.

This small gift of the "magic cord" from me to you is to let you know I care- and I'm sure everyone who knows you does also.

Hugs to you, Niki. Many wishes for blessings to come to you and your family.

-Carol at Hallmark


Wow! I could not believe that this person that I met only for a moment could care enough to do this for me. I also do not believe that it was a coincidence that I met her on that day. I know I was guided there at the right moment. I needed to hear the words that she wrote to me. Even though I already knew what she said was true, it helped so much to hear the words from someone else. I'm thankful for the Lord's tender mercies and for my guardian angel.

Wednesday, September 14, 2011

Chief of the Medical Staff




Rheese's heart surgeon, Dr. Michael Teodori, had this painting hanging in his office. When I saw it I felt a great sense of peace to know that the surgeon working on my son relied on Christ and knew that He was guiding him in his work. I had felt this way on the day of Rheese's 2nd surgery too. The plan for that surgery was to go in and make a wall between the 2 ventricles and also to switch them around because they were transposed. We waited in pre-op for over an hour past surgery time when Dr. Teodori finally came in to talk to us. He told us that the plan had changed because of new information from the heart catheterization they had done. They were now doing the Fontan. He told us that he had not felt good about the other plan but it was what made sense to do. He said that he finally felt good about the path they were taking Rheese on and it was the right thing to do. I knew that he was being led by the Spirit. I knew that our little boy was being watched over and protected by our Heavenly Father and that he would be ok.

Wednesday, September 7, 2011

A Beautiful Memorial

Rheese's headstone was placed on July 5, 2011. I am so happy with it. It is perfect. Everything about it says Rheese from the color of the granite to the pictures and the fonts. I smile whenever I see it : ).

Thursday, September 1, 2011

How was Rheese really feeling?

I am reading a book called, "Before My Heart Stops", by Paul Cardall. He was born with a congenital heart defect that was opposite of Rheese. Paul had double-inlet left ventricle and Rheese had double-outlet right ventricle along with other things, but they both had the same repair, a Fontan. The book is his story as an adult waiting for a heart transplant. A lot of it is from the blog he wrote while he was waiting but there are other parts that explain what happened to him as a child growing up with a CHD. As I read it I think back to moments with Rheese. One that I just read had me in tears. He said that before his Fontan he would get so exhausted just walking up the stairs and getting around school that it made him nauseous. For the last few months of Rheese's life he threw up quite a bit and we couldn't find a reason why. Many times it happened at school and he'd have to come home. It just makes me wonder how bad he really felt but didn't tell us. I knew he wasn't feeling good and was trying to find out why but I know I didn't get how bad it really was. A little boy in his class told his dad who then told us that a couple days before he died he told him that his chest felt funny. The boy told him to tell the teacher but he said something to the affect that it does it all the time and will go away. I had NO idea this ever happened because he never told me. I wish I could ask him how long it had been going on. Maybe he had lived with it his whole life, I don't know. He also used to get really grumpy, I mean REALLY grumpy. I now think it was because he didn't feel good and that's how he reacted to it. I used to just think he was being a stinker. Oh, there are so many questions I wish I could ask him. I'll just have to wait. One day I'll have the answers.July 2008 after getting his pacemaker.

Monday, August 22, 2011

Boy Scout Patch

Not too long after Rheese died his Scout leader, Kimball Washburn, told me that he was working on something for us about Rheese. They had moved though so I didn't know if anything would really come of it but it made me feel good that he was thinking of us and him. Last month our troop had its Court of Honor and Kimball came back for it. He got up and talked a little bit about Rheese and how much he had made an impact on his life and how he thinks about him a lot. Just that right there was huge to me and had me crying, then he showed us what he had been working on. He had scout patches made in Rheese's honor. He used the picture of Rheese as a Bear in front of the flag but had the uniform changed from Cubs to Scouts and added the green because it was Rheese's favorite color and the Mickey ears because Disney was such a big part of him. Kimball told us that when he was telling the people what he wanted he said that the most important part was to get his smile : ). He told us that the Rheese Miller Difference is that we need to do our best in all that we do and not complain when things are hard. Rheese was always smiling and didn't complain about his heart. He didn't make excuses that he couldn't do something because of it and that's what we all need to do. I was definitely crying after that presentation. I cannot even begin to tell you how touched I was that he did that for us. Touched isn't even the right word. My heart felt like it was going to burst because I felt so much love. I am truely amazed everytime I hear of how Rheese touched so many people's lives. This little boy made such an impact on people in his short life. I was talking to Kimball afterward and he asked me if it was ok that he added the Mickey ears. Of course, they are perfect!
Rheese with his Scout leaders, Jared Bates and Kimball Washburn.

Sunday, August 21, 2011

You'll Be Poor

Tonight we were at my parents' house and this story came up that I had to include on here. George told it at the funeral but it needs to be written. Rheese was very concerned about his cousin, Brandon, not being married and being 25. He used to ask me all the time when Brandon was going to get married. Well, one day he told Brandon that if he didn't get married by the time he was 30 then he was going to be poor. LOL! And he was completely serious. I don't know where he would come up with things like this but he did often. We now like to remind Brandon that he better find someone because he doesn't want to be poor. What a funny boy!

Tuesday, August 16, 2011

5 months

It's been 5 months today since we laid our little Rheese to rest.  Since those days in March we have been very aware of what day it is each month, whether it be the 11th or the 16th, until this one.  None of us recognized the significance of the 11th of August until a few days later.  I was upset with myself for not remembering but then we wondered if it is a sign that we are healing just a little.  I know I thought about Rheese that day because I do everyday but I must have been thinking of his beautiful smile or his infectious laugh instead of remembering the day he left for his home above.  Most days I wonder if the hurt will ever go away or if I can make it however many years until I can see him again, so maybe our forgetting the 11th, at least this one time, means that it will.  I don't think it will be for awhile, but maybe it will happen someday.  We miss you and love you Rheesey!!
-Niki

Friday, August 5, 2011

Heart Camp

I was at Wal Mart the other day and as I was paying for my stuff the cashier asked me if the bracelet I had on was a Rheese bracelet. I was a little shocked but said that it was. I did not recognize this lady and my mind was trying to figure out who she was. I then remembered a similar experience my dad had a few months ago and that it was Caitlyn's mom. Caitlyn is the girl that Rheese had a crush on. He would blush when he would talk about her. She also has a heart defect. After remembering my dad's story I asked her if she was Caitlyn's mom and she said yes. She asked how I was doing and I told her I was doing ok but there were definitely hard times. Then I asked how Caitlyn was doing and her answer was the same as mine. She then told me that Caitlyn was going to heart camp at the end of the month. This heart camp is on Catalina Island in California and Rheese really wanted to go to it. We thought about it last year but it made me a little nervous sending him off alone since he was only 10 yrs. old. We were going to try for this year. Wouldn't it have been fun for them to go together. But anyway, she told me that Caitlyn had Rheese's name put on her bag for camp in green rhinestones and she also has a Goofy on her bag. I was so touched. It meant so much to me that this little girl still thought about Rheese and wanted to remember him and take him with her. I am still amazed at how many people my little boy touched in his short life. As I left Wal Mart I had tears streaming down my face. How grateful I am for the Lord's tender mercies.

Wednesday, June 8, 2011

I'm Peanut Butter and You Are Jelly

I love this video of Rheese and I treasure it so much because it shows how much he loves his baby brother, Troy. Rheese loved to sing to Troy and he loved to hear it. This is the song he sang most of the time. It is by InsideOut and he sings it just the way they do. I had tried to record him once but missed it and never had the chance to try again. It wasn't something that could be set up, it needed to just happen. Right after Rheese died and we were still at the hospital, Trevor showed us this video that he had captured on his phone. My heart soared! I was so grateful that he had it. You can see the love in his smile. What a special moment between brothers.



Monday, May 30, 2011

Rheese's Funeral

I thought I should warn you before your proceed that there are pictures of Rheese after he passed away. I hesitated before I posted them because I didn't know how it would affect some people but then I decided to include them because they are part of his story. I carefully picked which ones to include. I think he looks beautiful in them all.



This is Rheese's casket but it isn't the one we ordered. I was a little upset when I saw that it wasn't the right one but it was still a beautiful casket. Unfortunately, since the funeral was the next morning they weren't able to send us the right one. Our family after we dressed Rheese for the last time. This was such a beautiful experience. I didn't know what to expect or if I'd be able to do it but it was so wonderful to be able to take care of my little boy one last time. I know that when all my kids were little and I was always dressing them or doing their hair or cleaning them up that it became a chore. But when you know it is the last time you truely treasure every moment. I know George and I didn't want to leave. We wanted it to last as long as possible.
Rheese's beautiful casket and flowers. I chose this bouquet because it had all of the kids favorite colors in it. Purple=Cassy, Orange=Chad, Yellow=Seth, Green=Rheese, Red=Lane (Troy doesn't have one yet ; ).) Daddy saying good-bye, one last time.Mom's last kiss until we meet again in heaven.Our last family picture.

You can see that there is a little Goofy in with Rheese to keep him company : ).Dad, Mom and TroyChadSethLane

Special musical number, God Be With You Till We Meet Again Our family releasing our balloons first.
Everyone else releasing them.
The balloons floating to heaven.
The lid of the vault.

Wednesday, May 25, 2011

Our Little Boy, Rheesey

Rheese was born on February 9, 2000 with multiple heart defects. He underwent 6 heart surgeries along with various other surgeries in his short time on earth. Rheese was a happy little boy. There was something about him that made you smile. He was also a very smart little boy. He asked questions that most of us never would have thought of asking and I didn't know the answer many times. In school, his favorite subject was Social Studies, specifically American History. He would come home and tell us the things he learned. I remember one time we were sitting at the dinner table, Rheese must have been in 2nd grade, and he started talking to us about the White House. He told us all about the fire and the year it happened. He told us about some of the presidents that lived there. He talked for quite a while. I remember sitting there in awe thinking that I couldn't believe that a 7 yr. old was telling us all of this. He also loved the Statue of Liberty. Rheese could tell you what all the symbolism was on her, like the 7 spikes on her crown represented the 7 continents. He liked to talk about her and hoped to one day see her in person. The closest he got was the one in Las Vegas at New York, New York. When George and I went back east in 2009, we got to see the Statue of Liberty. We got a Christmas ornament with her on it and Rheese made sure he got to put it on the tree each year.

Rheese also had a great love for all things Disney. I've always been a huge Disney fan but not like Rheese. He thought about it all the time. He wanted to be an Imagineer when he grew up so that he could design new rides. He couldn't wait to meet Walt Disney and talk to him about Disneyland and I'm sure that he has done just that. I can just imagine him getting up to heaven and saying, "Where's Walt? We need to talk." His 2nd trip to Disneyland was when he was 3 yrs. old. It was just one day and it rained nonstop until evening. It was also crowded. Don't believe people who say that Dis is empty when it rains. We spent most of the day trying to get from ride to ride as quickly as possible or sitting where it was covered. I don't remember how long after that trip this next conversation started happening but it was a while. I'm thinking like 6 mo. to a year. So he comes to me one day and wanted to talk about Dis. He brings up a ride, I don't remember which one but I'm pretty sure it was one in Fantasyland. He then says, "Don't you go this way, this way and this way to get to ____ from____?" I thought about it and I couldn't believe that he had the right directions to the ride. He did it with a few other ones too. He had been there one day, in the rain, while it was crowded a long time before and this 3 or 4 yr. old could tell me exactly where things were? I was shocked, in awe, impressed, surprised and many other things. It was after this that he wanted to talk about Dis all the time. I remember laying on my bed with my eyes closed and opening my eyes only to find Rheese sitting there staring at me. He would say, "You wanna talk about it?" That was code for: Let me talk at you about Dis. He would give us walk thrus on the rides. He would ask why Walt put certain rides in certain places or why he made things the color they were or other questions I couldn't answer. He didn't really want the answer, I don't think, he just liked to talk. Rheese's favorite character was Goofy. When we went to DisneyWorld he got this big, floppy Goofy hat that was way too big for him. It made me laugh when he would wear it. He was so proud to wear that hat. It was so cute!

Wednesday, May 18, 2011

Tributes to Rheese

Rheese's class made a scrapbook of their memories of him for us. We thought it would be nice to share some of those with everyone.

There is not much left to say. Only the feelings inside can express what we do know. Something that we do know is that he is in a comforting place with no pain.
He got through everything from birth to the end of his perfect life. He came to earth to start his journey, he accomplished life and left. What we know, he made every minute of every day last like it was his very last one.
Sometimes we have no tears left to cry because the most devastating things in life are tried to be left behind. Only now we can think of the memories. Which is the strongest thing you can know a person by.
I have been going through a lot at this point in my life. Nobody had known what was wrong with me. Someone I could talk to that would understand me was Rheese. I went to the hospital many times, for tests and scans. When Rheese had told me about all that he went through, I wasn't scared anymore because someone out there has gone through even more pain than I thought I was going through. His bravery taught and showed me more.
Rheese will always be in my heart and I will never forget him. May you always treasure the memories like I do.
Lovingly,
Julia

Rheese always had a good attitude and an unforgettable smile. I always enjoyed his Disney stories and his sense of humor. I would carry his saxophone for him and he would tell me about Disneyland.

Respectful
Humorous
Edgy
Energetic
Saxophone
Epic

By-Preston

What I am feeling about Rheese is that he won't be able to help me with math and I won't be able to see his smile that came to school with him everyday. He was very respectful to all of the kids.
Rheese told me a lot about Disneyland and it would make me very happy because I have never been to Disneyland before.
I am going to miss him because whenever I saw that big smile on his face it would make me happy because when Mrs. Hoffman would tell us about something I didn't understand he would be there for me.
-Ariel

What I mostly miss about Rheese is his "Sizzle, sizzle, sizzle I'm on FIRE!" I also miss that I've lost a good friend. I'm sad because I can't see him at scouts anymore. I can't play football with him and I don't see him right now. I wish he was still here, but I know he's happy up in heaven talking to Walt Disney. I feel guilty for not being at school that day. Instead I stayed home. I wish I was at school that day.
Rheese's friend, Mason

Rheese W Miller you will always be my friend in my mind and in my heart.
Love your best friend, Simeon

My Memories of Rheese
I didn't know him for long. I wish I had gotten to know him a little bit better. Rheese always brightened my day. Whether it was his smile or his laugh. He made me happy. I love how he knew everything about Disney! He could go on all day talking about it.
I do wish he got to know his little brother Troy better. Rheese always talked about him!!! I bet Troy will have a smile just as big as Rheese. I loved his personality and sense of humor.
Rheese was a great friend, and he still is in my heart.
Love, Savannah

Dear Rheese's parents,
I'm really sorry that your son has passed away. I miss him, my classmates miss him too. We used to always see his bright smile whenever we went to school. After we did lunch count we sang a song and he always said "sizzle, sizzle I'm on fire!" He was such a nice, sweet, and caring person. He used to talk about Disneyland and that when he passed away he wanted to talk to Walt Disney. I used to help carry his saxophone to his band class.
Classmate and friend, Jessica

Dear Mr. and Mrs. Miller,
I'm sorry that Rheese died. I'm Connor. What I liked most about Rheese was that his lifetime goal was to ride Screamin, he did accomplish it.
I lost a good friend, but I think he is bugging Walt Disney right now with all his questions. He will always be in our hearts. We will miss him a lot.

I sat next to Rheese for a long period of time and he was definitely full of surprises! What I remember most about Rheese is when he'd tell me all his exciting stores about Disneyland and Disney World. He'd also tell me facts about Walt Disney, he sure did know a lot and think of him as a hero!
I also remember that he said when he gets older he's definitely going to Disney college! Then when he graduates, guess where he wants to work...Disney. Of course. Probably at the famous California Screamin'!
The past month or so we've been learning about planets and he shouts, "My favorite planet is Saturn! (Because of the rings.) Our table started laughing!
Another time, at art masterpiece, Rheese and Simeon were playing around. Simeon said something and Rheese responds, "If your Mama were to sell something on E-bay it'd be YOU!"
Rheese William Miller was born February 9, 2000 and died March 11, 2011. He had a happy and full life. He accomplished so, so much, and I think he's happy with his live.
With love, Kaya
Rheese, you always got a friend in me!

Dear Rheese's parents',
I'm a student in Rheese's class and I know how hard it is to lose someone. Rheese was a good friend to everyone. He was just a joyful guy. I remember when he wanted to move Disneyland to Arizona.
-Dakota

Respectful person
Has a Great, Big, Smile
Elvis Impression
Extraordinary Personality
Sizzle, Sizzle, I'm on Fire!!
Exceeded Expectations

Rheese was my best friend and still is my best friend. I will miss his presence here at school and will miss his smile, Elvis impression, and mostly him. I will also miss his saxophone playing.
I WILL MISS YOU RHEESE!!!!!!!!!!
Love, Your Friend, Lauren

Rheese was the type of person that smiled all the time. No wonder he loved the Disney characters, they are always happy just like Rheese! He was a wonderful friend.
-Madalyn

My memory about Rheese is so special because he sat next to me in band. I love hearing him play his saxophone. He smiles while he blows. It's a true talent! It's going to be hard to get used to not seeing him anymore.
With love, Zoe

Tuesday, March 15, 2011

Obituary on AZCentral

If you'd like to read Rheese's official obituary, it can be found on AZCentral Website.

Monday, March 14, 2011

Funeral Services

Rheese's Funeral will be held Wednesday March 16, 2011.

Location: LDS chapel 7361 S. Conselation Gilbert 85298

Time: Viewing Begins at 8:30 a.m.

Funeral Services begin at 10:00 a.m.

I will post more specific information as I receive it

If you are able, Please help with funeral expenses by clicking the "DONATE" button. Thank you

Saturday, March 12, 2011

On March 11, 2011 Rheese William Miller returned to live with his Heavenly Father. He was a strong spirited little boy that left a smile on the faces of everyone that had the pleasure to meet him. His happiness, shown through his smile was contagious. Oh that smile was contagious! Rheesey (as most of his family members called him) was such a blessing to have in our lives. Everyday was a gift. 
For those of you that didn't have the pleasure to know him, here's just a glimpse of who he is.


In recent years of his life, Rheese loved scounting. This year he was able to advance from Cub Scouts to Boy Scouts. Definitely made his parents proud. 
He had a passion for Disney. Disneyland was probably his most favorite place to be in the world. 
He was small in stature, but insisted on playing the saxophone
Aside from Walt Disney, if he could meet anyone, Abraham Lincoln was next in line. As family and friends, we teased that when we get to Heaven we'll be able to find Rheesey with one or both of them. 


Although his life on this Earth was relatively short, he lived each day with so much enthusiasm and loved it. He loved his family more than anything. (Even Disneyland) He will truly be missed, but our lives have been so blessed to have had him with us.


 We love you Rheesey!

An account has been set up by Rheese's Uncle. Its purpose is to raise money to help Rheeses family that is remaining behind on this earth. The money will be used for funeral expenses other neccessities as Rheeses Mom and Dad see fit including a cash donation to Phoenix Childrens Hospital. Donations to Chase Bank name of Dan Turley acct.# 964513378
Donations can also be made by clicking the "Donate" button on the blog.


Thank you for your help