Friday, August 20, 2010

Amazing Gift

An amazing photographer offered to take pictures of the family for a slide show presentation at our benefit dinner tomorrow night. We had the pictures done on Tuesday night and I got a sneak peak at a few of them from her blog. I cried the first several times I looked at them. I think she did a wonderful job and I can't keep my eyes off of them. I keep coming back to look at them over and over again. Enjoy :)

Sneak Peek

Friday, July 16, 2010

Next Step

Will has decided to start chemo. He will be admitted to the hospital on Tuesday morning to start round 1. It is an in-patient regimen and should last 5 days. THank you for your prayers, we really need them right now. I have been posting a lot on the helping hands site instead of the blog, mostly because I don't have time to post 2 times. So if you are interested in the details, I would encourage you to go to THIS site. Hope everyone has a nice weekend. We will be showering Will with all the attention he can stand :)

Friday, July 09, 2010

Back From Houston

We got back from Houston late Wednesday night. The storm we drove through to get home was oddly appropriate for our moods. We got te Pet scan results that afternoon and it shows about a 20% growth in the tumors and new ones as well. I will write more when we have more information as to the what, when and where of Will's next step. We would appreciate your prayers for our family and especially for Will.

Saturday, July 03, 2010

Benefit Dinner and Silent Auction

Some friends of ours are organizing a benefit dinner and silent auction to help us raise money to continue Will's treatments. Insurance won't pay for any of it and it is quickly adding up! So, if any of you are interested in helping us get donations for the auction please let me know and I can email you the form. Or if you are on the Helping Hands site it is available there under the "Resources" tab. If you are not a member and want to keep up with updates about Will you can join that site. Just click HERE. The dinner will be on August 21st and it is going to be so fun! It will be a New Orleans theme with a DJ, jambalaya dinner and fun Mardi Gras decorations. We are so excited about it! Hope you all have a fun and safe weekend.

Monday, June 21, 2010

Birthday Party

Here are a few pictures from Liam's party. For some reason some of the pictures won't upload. I will try again later to get the rest up.



My Baby Is 3!!!






Liam turned 3 last Thursday. I can hardly believe it! He has grown so much this past year; in more ways than one. He is 36" tall and in the 17th percentile now and 28 pounds with all of his clothes on (and full of food from lunch) and in the 15th percentile now. Some of his accomplishments this year include: He can count to 20, recognize his upper and lower case letters, knows the sound of every letter, started writing letters and holding the pencil correctly, quick witted and soooooo funny! He loves to make all of us laugh, but especially his sisters. He is also very charming with the ladies. Everyone who meets him is amazed at how well he speaks and how great his vocabulary is. He loves to fish, sit on the back deck with his play gun and shoot at the ducks, play baseball, soccer and football and any other game he can think of with a ball. He is absolutely ALL boy and it is so fun. These pictures are from his actual birthday. We made his allergy free cupcakes that day while the girls were in VBS. If anyone wants the recipe let me know. They came out fabulous! I will post pictures from his party later.

Friday, May 21, 2010

Fishing






Here are some pictures I took of the kids with their fish. Each of them caught a fish with a little help from my mom. (Except for Emma who did the casting, catching and reeling all by herself!) Liam tantrum was because he wanted to stay outside and catch more fish. A daddy fish to be exact. He said that he had only caught a mommy fish and he wanted to catch a daddy one too! My mom was comforting him, but it soon turned into a flailing kicking, screaming fit on the ground. He had to be picked up and brought inside to time out to cool down. Either the boy REALLY likes to fish like his Uncle Chris, or he was in desperate need of a nap. Okay, maybe a little of both :)

Thursday, May 20, 2010

Big Girl

My Pagey is getting so stinkin' big I cried last night. She learned how to ride a two-wheeler this weekend thanks to her Poppy and her Daddy. And last night she lost her first tooth! This post will be dedicated to that.

She came running down the stairs last night about 8:30 all excited that she had pulled out her first tooth. We took some pictures and helped stop the bleeding, which was more than I thought it would be. Then she said she wanted to put it under her pillow for the tooth fairy. Here is where I need to insert some background information. Will and I both felt devestated as children when our parents told us that Santa Claus wasn't real. We felt like our parents lied to us and were really hurt be the experience. (I know it is odd that we both felt that way, most kids don't care.) So when we got married we decided that we would never lie to our children, not even about the littlest thing. So, we don't do Santa or the Easter Bunny. We simply focus our attention on the real reason for the holiday instead of the make believe. They still do all the things other kids do, like take pictures with Santa and do Easter egg hunts and things like that. But it is just for fun, they know the real meaning behind everything. I know a lot of people don't agree with that, but it was something we felt strongly about and both wanted to do for our family.

So back to last night when Page said she wanted to put her tooth under her pillow I was taken aback. I didn't know what to do. She was SOOOO excited and full of joy. People have told us that we are depriving our children of fantasy and of being a child and those thoughts came rushing into my head. What if we are? Should I do it? She seems to think it is real, what could it hurt? So I got her a little bag to put her tooth in and she asked if she could write a note to the tooth fairy asking to keep her first tooth so she could show all of her friends at school. Once she was asleep I sprinkled glitter in a trail from her window sill to her bed and a little on her sheets. Replaced her note with one that said how proud of her "Flossy the tooth fairy" was for brushing her teeth so well. Then I put taped the tooth bag and the money to the card from Flossy and put it under her pillow.

Well first of all, the glitter in her bed was a bad idea. She got some in her eye when she woke up. She asked a few times if the tooth fairy had really come and I said yes. I lied to my daughter.
I took Emma to gymnastics and when I came back page had a few questions. She asked Will in the middle of a story if he had seen her come into the room last night. He thought she was talking about the tooth fairy, and said no. Then she asked if I was in bed when he woke up this morning. It was then that he realized where this conversation was going. She went on to say that she knew the tooth fairy wasn't real but that she pretended because other friends argue with her about it because she doesn't believe. He said to ask me about it when I got home and that we really just wanted her to enjoy the make believe with her.

When I got home she asked me why I tricked her. She knew the tooth fairy wasn't real and wanted to know why I would lie about it. Okay, stab me in the heart and make me cry again! I told her that she was so excited about it we wanted her to keep being that excited. She said she didn't like me tricking her and to please not do it again. I said that we could still keep doing the tooth fairy game even though she knew it was me and daddy. She said she didn't want to except one more time. Then she said that she wanted to put her tooth under her pillow but for us not to do anything. She wanted to see if the tooth fairy was real. I was kind of confused by that statement because she said that she knew we had tricked her bad that it wasn't real and then at the end of the conversation wanted to see if it was real.
Emma also had some issues this morning. She got on the floor and was examining the "fairy dust" for quite a while before asking me if it was true. I told her that I had heard that when Flossy dances in your room she leaves a trail of glitter. She asked me again and I lied and said yes, it was real. I could tell that she didn't believe me and I didn't know what to do. Man this sucks! I promised to never lie, my kids trusted me and then I lied and they felt betrayed. The exact thing I was trying to protect them from. Lesson learned, DO NOT LIE TO YOUR CHILDREN. They didn't care that it was pretend, they wanted to know the truth. I hate that I lied to them.

On a lighter note, here are some pictures.












Monday, May 17, 2010

Pain

Please pray for Will. He has been in unbearable pain for 3 days now. He thinks it is his kidneys, but we are not certain of that. His doctor won't call us back, after 3 messages have been left. He is getting on a plane shortly for a very important trip (and will return tomorrow evening) and is asking for everyone to please pray for him. God knows what the problem is and God can heal him, we need another miracle today!

Wednesday, May 05, 2010

Good News

We got some good news yesterday! DSRCT generally doubles or triples in size every 28 days. Will's tumors have not changed at all in the 6 weeks between scans. The doctor at MD Anderson was "very surprised" by the result of the latest PET scan. We are taking that as encouraging news and believing that God is doing a mighty work in his body! I smiled so much last night that my cheeks were hurting. Will said that was the best news he had been given in several months. We are so thankful for your prayers and ask that you please continue to beseech our Heavenly Father on Will's behalf.

We will be meeting with the local oncologist in Dallas on Tuesday to discuss these results and to talk to him about what we have been doing for the past few weeks that we want to continue. I will post in the near future about what alternative therapies we have been using to help with this battle. Anyway, thanks you again for all of your prayers and support - keep them coming!

Tuesday, April 27, 2010

Our First Day

We made it to Houston late last night exhausted, and yet unable to sleep. Will managed to get a few hours, but I was awake all night. I prayed and tossed and prayed some more and tossed some more, and you get the idea.

We met with Dr. Ludwig this afternoon for our consultation. He wanted to run some more labs, do more x-rays and another PET scan. The good news is that we have that all scheduled this week and will be heading home this weekend! I am so happy about that :) Anyway, he told us that basically this type of sarcoma is very similar to Ewing's tumor and Wilm's tumor and the course of treatment is very similar to the way they treat those two types of cancer. It would be 5 straight days of 3 different types of chemo and then off 16 days for a 21 day cycle. Days 10-14 would be roughest days for him because of the white blood cell drop that would occur happens on those days. We could do the treatment in Dallas with the doctor we saw a couple of weeks ago.

He said that we would know if this treatment was going to work within the first 2 cycles. We would return to MD Anderson in 6 weeks to redo the scans to see if the tumors were responding to the chemo. This protocol is very hard on the kidneys and the heart. Both will be monitored 3x's a week to make sure they are still functioning properly. If either one starts to decline they would have to discontinue the regimen and start on plan B and if that doesn't work there is a third group of drugs they will try. If none of those work he would be considered for a clinical trial.

He is not a candidate for surgery, which is sometimes an option with this disease, because of the number of sites the tumors are.

The doctor says he has an 80% chance of living 1 year with treatment. After that he said that the average patient with this type of cancer only survive 2-3 years with treatment. I am crying as I type this because it is the first time a doctor has actually given us any kind of time line. We have read a lot online about how fast and horrible this disease is, but when you hear it face to face it is so hard to hear. I am holding on to God's healing power and trying not to put too much stake in what a doctor says. God alone numbers our days and knows exactly how long Will is going to be here with us. I am still hoping on 50 more years with him! With God all things are possible. I believe that with all of my heart and I will put my hope in Him.

Please continue to pray for peace as we wrestle with some very big decisions and wait to hear what God is directing us to do. NO one should have to make these sorts of decisions and my heart is breaking for our family and for every other family out there that has or is or is going to have to deal with this difficult diagnosis.