Saturday, January 22, 2011

New year and finally a new post!

So I guess it's been more than awhile since I've commented on the lives of the Brittons'. Where do I even start... Since my last post Lettie has continued to have seizures, back to daily, sometimes two in a day. They have gradually become more aggressive, just like our pre-surgery seizures so as you can imagine, very disheartening for us. I guess I haven't really posted in awhile cause I just hate talking about these... they seem to be taking up a large chapter, better yet volume, of our lives and I'm just tired of it and honestly angry. Mostly bitter on a daily basis. I'm sure most parents with a special needs child would empathize with how I feel...just crummy most days. This is not at all how I thought things would be post surgery, but I guess it can be best explained as, " God is in control." I will not lie and say that my faith has not tested during these times because it totally has! I don't want you to think I'm asking for sympathy because this is the life God has given to us, the children God has given to Mark and I to raise and we will take this challenge and do the very best we can given the circumstances. I will say to you that I do often yell and cry in the car on the way to therapy when it's just me and Lettie and say life stinks right now and just pray it gets better or that I will learn to handle it better.
We are currently on week 6 of our new med, Lamictal and seizures continue...and actually seem to have gotten more aggressive since our visit in December. We return to Vandy in March and will do another EEG and see what it says. As far as development, nothing really new. She still doesn't talk or crawl or walk and can only sit up on her own for about 20 minutes. She can't really chew like a normal child her age, mostly we mash up food for her like mac n cheese or spaghetti and she still drinks from a bottle. She has some movement from her left shoulder and elbow but nothing functional and doesn't really move her left leg much at all. She is however getting tall and HEAVY! I know this very well because I am her current and full time transportation source everywhere. My back and neck have informed me of her recent growth changes! She is such a sweet baby though and we love her so much. She absolutely adores Jack! She lights up when he kisses and hugs on her. Gotta be thankful for the sweet moments with her.
By the way, we have also re-inherited our old house recently! The family that was supposed to buy it has now moved to a new state and new job so if anyone is interested in a home in West Knoxville let us know! Just another thing to add to the list of unfortunate events in our lives right now! Have I mentioned already how crummy things are right now!

Fantasy of Trees 2010





Got some good pics when we went to the Fantasy of Trees. On our way to the car Mark was running with Lettie and she started cracking up and I got some cute pics of her!

Family photos





We had some family pics made for our Christmas cards and it started snowing just before we left for our session, OUTDOORS ! They actually turned out great but we were only able to last 30 minutes of our hour long session because it was so cold. Lettie had a hard seizure right before we left as well so she doesn't look her best but got a smile in a few. Thanks so much to Tracey Ancelet for a job well done on these! A great photographer and sweet soul!

Christmas 2010






A little late on the Christmas news so I'll keep it brief. Jack and Coop had an awesome Christmas this year... air hockey table, indoor basketball goal, kinect for Xbox, vanity, cash register, and Coop got a desk with her own office supplies to set up shop! Coop told us she wanted her own office so Santa set her up! It's so much fun playing with the cash register and all that stuff. Jack is playing stuff non-stop with all the cool stuff he got. The basement is like his own Chucky Cheese with air hockey and basketball! Lettie racked up as well with Santa dropping her big gift off Christmas eve night.. a goldendoodle pup! Santa left a note on our front door that she had a gift he dropped off in her room because he was afraid it would get too cold in the sleigh while he had to drop all the other Christmas gifts off. We named him Ollie and hope to get him trained to be able to assist and provide companionship for Lettie. We know of a lady that trains goldendoodles for autistic children and hope to get help from her after we get him potty trained. Ollie is going to be big, somewhere around 60 lbs or so and this is a whole new experience for us since we have never had a "big" dog. He is already bigger than our other dog Bealie who is 7 and he is only 15 weeks.