The Adventures of the Brittons

So Vandy called on Thursday and Lettie's MRI is scheduled for May 2 at 9:30am. We will then be admitted to the hospital for a day or two to begin our ATCH injections and weaning off of her Vigabatrin (this is one of her seizure meds we ship from Canada). Alot is riding on the results of this MRI. If it shows that the right hemisphere is completely disconnected then ACTH is a go. IF the MRI shows microfibers still attached to the right side then that will be discussion time of what to do next. Do we go ahead and put her through the ACTH side effects again and the difficulty of it to "possibly" stop the seizures; do we go for a second opinion MRI somewhere else; do we prepare for another surgery at Vandy (the first one there stunk..I mean reeked!). So much to decide! Please specifically pray that God will make the answer VERY clear for Mark and I. As for Lettie, she has had a seizure every day since Wed. Looks like her brain is back on that stupid cycle again! As I'm typing this post with my left hand I'm holding her in my right arm..all 25 pounds, cause she fell asleep and woke up with a terrifying look on her face and screaming. She does this sometimes and I don't know if she's scared or hurting...it's a tough one. I will post later about Coop's soccer and Jack lost another tooth; my body is tiring quick and my right bicep is burning! I've got to find time to workout!