So as I sit here thinking about our heart journey, which I haven't caught all the way up on here, I wrote down a few thoughts and feelings that came to me and I wanted to share them.
I never knew how hard this heart journey was going to be. When doctors explain it all to you they make it sound so simple and even though they explain some of the risks it never felt real. Yes, I know that soon after birth he would need to be moved to the children's hospital. Yes, I understood that they were going to cut open my baby chest and sternum in order to reach his heart. Yes, I knew they would need to stop his heart in order to repair it, but do we associate the feelings and images that brings?
For me the answer was no, not at first. I think that even though I knew months before his birth that this would all take place I was still in shock and dazed when the time actually came. You can't know or understand what it is like to watch them take your baby away hooked up to tubes and wires while you're still in bed recovering from child birth.
You don't realize the feeling of over whelming sadness you will get seeing other parents take their babies home while you have to leave yours at the hospital hooked to machines. I never knew it would be so hard to watch my baby go without food for weeks while awaiting surgery wanting nothing more then to hold him, feed him and take him home. I never imaged how much fear and doubt I could feel every time his stats dropped, heart rate changed or tests came back with low numbers.
And then the day finally arrives. The day you have to hand over your sweet innocent baby to the hands of someone you have only meet once or twice. Trusting that what they are about to do will make things better, will give my baby a better chance at life. And then you wait, pray and worry and then you wait some more.
Through this all it never really hit me what was really happening. Not until it was over and you finally get to see them. If you thought you were in shock before I can tell you it is nothing like that moment. So if you were to ask me what it was like going through this journey so far I still don't have the words to explain it, but I do know that I am thankful for everyday I get to spend with my sweet, amazing, strong, brave little boy.
May 26, 2010
13 days old
April 12, 2013
2 years old



















































