Tuesday, June 30, 2009

Run Across Alabama

My mother's co-worker has a child with Tay-Sachs disease. His story is heartbreaking.

The parents are determined to enjoy the time that they have left with their son and are raising money for Tay-Sachs disease research and awareness by running across Alabama.

From their blog:

What and When?

Starting on July 1st at the Georgia Border near Cloudland,GA and Mentone,AL , the run will travel west across Alabama through Fort Payne, Guntersville, Hartselle, Moulton, Russellville, and on July 4th will finish at the Mississippi State line near Red Bay,Alabama. Runners will complete about 50 miles a day for three days followed by 29 miles on the 4th day for a total of 183 miles.

Why?

Elliott was diagnosed with infantile Tay Sachs disease at 9 months old. Although he will never walk, let alone run, one of his favorite pastimes is riding in the jog stroller during his dad's weekend runs. Fresh air, sunshine, and a nice breeze is heaven to him and his dad. One of the lessons Elliott has taught us is to enjoy and live for today and embrace what we have and what we can do. Our hope is that by completing the run across alabama, we will help raise awareness of Tay Sachs and raise money for NTSAD as well as inspire others to dream big.


From NTSAD.org:
A baby with Tay-Sachs disease appears normal at birth and seems to develop normally until about 6 months of age. The first signs of Tay-Sachs disease can vary and are evident at different ages in affected children. Initially, development slows, there is a loss of peripheral vision, and the child exhibits an abnormal startle response. By about 2 years of age, most children experience recurrent seizures and diminishing mental function. The infant gradually regresses, losing skills one by one, and is eventually unable to crawl, turn over, sit, or reach out. Other symptoms include increasing loss of coordination, progressive inability to swallow and breathing difficulties. Eventually, the child becomes blind, mentally retarded, paralyzed, and non-responsive to his or her environment.

To date, there is no cure or effective treatment for Tay-Sachs disease.

Even with the best of care, all children with classic Tay-Sachs disease die early in childhood, usually by the age of 5, although some do live longer.

Tay Sachs is caused by a defect in the HEXA gene on the 15th chromosome. The defect occurs in 1 in 250 in the general population. The gene is recessive so both parents must be carriers and then there is a 25% chance that offspring will contract the disease.

Thursday, June 25, 2009

Boys on Boards

Ryan


Mr. Pie



Matthew warming up.

Wednesday, June 24, 2009

K9 or Feline?

On top of the birdbath in front of the living room. Higher vantage point.


On the windowsill outside our bedroom.

Tuesday, June 23, 2009

The Government and Health Care


My opinion on the government having any more involvement in any part of health care can basically be summed up by this: Why would you trust the government to have any say in something as important at your health care? There's so much that they can't get right, I don't want them messing with something as important and personal as my health care and medical decisions.

I know the big reason that people want government intervention in the health care industry is so that they can "afford" it. The problem with this logic is that you won't be getting anything for free, and government-run health care will not make it any more affordable.

President Obama's proposed plan would still allow for a "public" option (for employees/employers to purchase their own health insurance of their choice) instead of using the "single payer system" (like Medicare, where the government directly pays the doctors), but it would require employers to pay for their employees coverage or pay a fee to the government instead. This will increase the cost of employment, and in a recession, will ultimately result in fewer jobs. If a company can't afford to hire 10 people AND provide health insurance for them, what are they going to do? This will result in fewer jobs, and an eventual rise in the price of goods and services.

If a company's operating costs rise like this, how do they recover their lost income? By raising prices. Simple economics: $$ going out cannot be < $$ coming in. Who pays for the increase in prices? Consumers (aka the American taxpayer). Whether you're paying for an increase in taxes (which you will) or an increase in consumables/services (which you will), the cost of government mandated or provided health care will increase your expenses. Obama's plan would also eventually strangle the private insurance industry. Author Michael Tanner explains: "The Congressional Budget Office [concluded that the proposed plan] would result in roughly 23 million people losing the insurance they currently have. Regardless of how it was structured or administered, such a government-run plan would have an inherent advantage in the marketplace because it would ultimately be subsidized by American taxpayers. The government plan could, for instance, keep its premiums artificially low or offer extra benefits since it could turn to the U.S. Treasury to cover any shortfalls. Consumers would naturally be attracted to the lower-cost, higher-benefit government program, undercutting the private market. A government program would also have an advantage since its enormous market presence would allow it to impose much lower reimbursement rates on doctors and hospitals. Such cost-shifting would force insurers to raise their premiums, making them even less competitive with the taxpayer-subsidized public plan. The result would be a death spiral for private insurance... [A]s many as 118.5 million would shift from private to public coverage. That would mean a nearly 60 percent reduction in the number of Americans with private insurance."

A local doctor told me recently that when she had her private practice, she had to make a decision about which patients should could afford to accept. She couldn't afford to accept both TRICARE (health coverage for the military and their families) and Medicare/Medicaid patients. She could only afford to take one type, so she chose TRICARE. Why? Medicare/Medicaid/TRICARE (government-provided healthcare) dictates what they will pay for every medical service offered. There is no negotiation. For example, your doctor might bill $100 for a certain test, but Medicare will only pay them $35. To make up the difference, doctors often have to raise the rates on other patients - those with private health insurance or that pay out of pocket.

Imagine if everyone was covered by a single-payer system. No one would want to become a doctor because they couldn't afford to run their practice. The country is already experiencing a shortage of primary-care physicians, but it would become more like the shortages in Canada and the U.K. if things keep heading this way. Mandating how much to pay for medical procedures and prescription drugs is potentially disastrous. In addition to discouraging people to go into the medical profession, it passes the cost to other parties (aka taxpayers) and cuts profits that are used for medical research and new drug development.

Think that the U.S. doesn't do it's fair share in paying for people's health insurance? "Although nearly 46 million Americans are uninsured, the United States spends more on health care than other industrialized nations, and those countries provide health insurance to all their citizens." (NCHC) We've already increased funding for SCHIP by raising taxes, and as I've said before, the money doesn't always get spent the way they tell you it will.

One line that has been used a lot over the last several years is that there are 40-50 million "uninsured" Americans. This number has been proven to be completely misleading. One report digs into this widely-spread myth: "[According to the Census Bureau, this figure includes] 9.487 million people who are 'not a citizen.' [Another] 8.3 million uninsured people... make between $50,000 and $74,999 per year and 8.74 million... make more than $75,000 a year. That’s roughly 17 million people who ought to be able to “afford” health insurance because they make substantially more than the median household income of $46,326... It is also worth noting, that, 45 percent of uninsured people will be uninsured for less than four months according to the Congressional Budget Office."

For more misleading figures and health care myths, read this article on FoxNews.

How do you decrease health care costs? Some ways might include: raising competition (not lowering it), lowering the costs incurred by doctors (medical malpractice insurance and the resulting need for lots of expensive tests, for example), getting people out of the emergency rooms that aren't emergency cases, stop paying for non-citizens' coverage through state and federally funded plans, encouraging more people to get their own health insurance coverage through tax breaks and higher competition between insurance companies, and increasing the use of nurse practitioners and nurse midwives for run of the mill illnesses and normal birth (HT: Mrs. A).

With the nationalization of GM, the banking industry, and who knows what next, I say that we should keep the government out of our health care system, which makes up about 1/6 of the US economy, as much as possible.

Monday, June 22, 2009

Monticello


Last week, while on a business trip, I had a few extra hours before my flight out. Instead of spending it at the tiny airport in Charlottesville, VA, the group decided to check out Monticello.

Monticello was the home of Thomas Jefferson. While I knew some things about him, visiting his beloved homestead - even for just a couple of hours - gave me new insight into our third President.

Jefferson grew up in Virginia and and ever since he was a child, he wanted to live at Monticello. He inherited the land at age 14 when his father died. Work began on the house in 1768. Shortly after his wife Martha's death in 1782, Jefferson lived abroad as the US Minister to France for several years. While in France, he studied Palladian architecture and upon his return to Monticello, began a major reconstruction/renovation of the home.

While the home isn't an enormous mansion of Biltmore size, it's still a very beautiful large home. Jefferson put a lot of thought into every detail of the house. Instead of having several outside buildings for kitchen areas, a smokehouse, stables, etc., he incorporated many of these into the porticos that span out from under the house. This kept these buildings from taking away from the landscape and kept them cool as they were partially buried into the hill. The porticos form a U shape with the house in the center. At the entrance to the house, the porticos just look like two large L-shaped decks that span out from either side of the house. Jefferson installed metal roofing underneath the wood deck that caught rainwater and stored it in a cistern. He built an icehouse deep into the portico floor so that he could have ice for preserving foods in the middle of the hot Virginia summers.

I think that if we had lived in the same time and place, Jefferson and I could have been friends. Nevermind his views on the right to bear arms, limited government, individual rights, his advocation for the elimination of the national debt (even though he was quite indebted himself), etc. - the man was also into plants.

I don't just mean that he enjoyed a well-tended garden, but that he really loved studying and growing different types of plants. He not only had hundreds of cultivars of vegetables, flowers, and trees, but he also spent a lot of time developing new plants and finding the latest specimen available. This was not a time when you could open up a catalog and order your favorite hydrangea. Most of the plants we have available today either did not exist or had not been brought in from other areas of the world yet. Jefferson took detailed notes on all of his farming, gardening, and botany exploits. He even trained Lewis and Clark on how to take plant samples so that they wouldn't kill everything they tried to bring back from their expedition.

Upon Jefferson's death, his estate was in such deep debt that his surviving daughter had to sell the farmstead. Thankfully, its subsequent owners appreciated the importance of the home and kept it in rather good shape until it was bought in 1923 by the Thomas Jefferson Foundation.

I only got to spend about 20 minutes in the garden tour (this is what happens when you go somewhere without enough time, and are accompanied by three sweaty guys who'd rather go back to the AC than listen to some old guy praddle on about flowers in the 98-degree weather), but it was probably the most informative 20 minutes that I could have asked for. Poor Matt is now faced with the task of taking me back sometime so that we can do the whole tour (including the house, which I really wish I could've done).

Monday, June 15, 2009

Sheer Terror

What do you get when the boys are the ones driving the boat and taking the photos?


Before


After

Sunday, June 14, 2009

Diaconate

This evening, the congregation of our home church elected Matt and two other able men as deacons.

We believe that deacons are the formal administers of service and mercy within the church family. They do everything from making sure that the building is unlocked prior to worship to ensuring that the physical needs of the congregation are met. While we're all called to serve, deacons are simply the formal positions of service recognized within a congregation.

Please pray that we will strive to joyfully and humbly serve our king, and do so without grumbling or complaining, working to live up to the guidelines set forth in I Timothy 3.

Thursday, June 11, 2009

DMB

The Dave poster that I proudly hung throughout college is the only celebrity poster I've ever owned.

Anybody else a Dave Matthew Band fan? Love, love them!




I'm going up to Charlottesville next week, will have to try to see Miller's Restaurant while I'm there.

Wednesday, June 10, 2009

June Blooms

Each week, something new is in bloom. Here's a peek of a few of the plants that are thriving in the yard:

Lilies. Here are the yellow ones that have been the first to bloom. My mother-in-law has the most gorgeous lily bed full of oriental, asiatic, and tiger lilies.


Several of the daylilies are bursting open too. These are all rebloomers, and a few more cultivars have yet to flower this year.

Daylily 'Edge Ahead'

Daylily 'Rosy Returns' (my favorite, it's an "ever-blooming" pink)

Daylily 'Plum Perfect'

Daylily 'Purple De Oro'

Clematis 'Arctic Queen'

Echinacea (Coneflower) 'Summer Sky'

Rose 'Sun Flare' - much happier than last month!

Daylily 'Russian Rhapsody'

If you ever see something you like, let me know, and you can get a division in the fall. :)

Tuesday, June 9, 2009

I've Got Great Boots Boots


Last week was our fifth anniversary (FIFTH!). We don't normally do anniversary gifts but decided to do something small this year since, after all, five years is like a real number or something. ;) (And no, as far as we know, we're not having kids yet just because we've been married for five years).

Anyway, I know it's really lame to put up pictures of your own presents, but I am so excited about these that I had to share. Matt got me these way cute rain boots (I wanted some so I can stomp around in the garden when it's mucky without ruining my shoes). I have been wearing them all over the house, waiting for some dreary weather to test them out in.

I've never had rain boots before, and am therefore more excited about these than any normal person might otherwise be. Plus, I love presents - any kind of presents - giving and receiving. I think he liked buying these for me more than the cow manure I've requested for past birthdays (hey, plants love it).

For those who are curious, Matt got his first scheduled shipment of Peetniks (thanks Penny's parents for the info) and a jigsaw - which he has yet to pick out.

Monday, June 8, 2009

Fiberglass Class

So, we've both been major slackers on posting lately. Between work, class, the gym, and church, I've basically spent every other waking moment helping Matt getting the boat back into shape.

One of the major projects we worked on was replacing a small section of flooring and the base of the driver's seat that had succumbed to rot. Matt is basically my mechanic and handy man, and let me just tell you that he knows a lot! I would have never guessed that one of his hidden talents included experience with fiberglass work.

I thought it was pretty interesting, so I decided to document the process. (click on thumbnails for higher res. photos)

Supplies: Lacquer, Epoxy: hardener and resin, paint brushes, and fiberglass cloth. (Not pictured: wood filler putty. Also not pictured: Matt's helpful assistant, Becca).

Here's the area that needs to be replaced, we've already pulled back the carpet, pulled out the rotten wood, and cut out new pieces of wood to fit right in.

The wood is cut out and must be fully lacquered before installation. We applied about four coats of lacquer, letting the wood dry for several hours between each coat. This protects the wood from moisture and is essential to keep/delay it from rotting.

Cut the fiberglass into small strips; you'll layer them as you go to make certain areas stronger.

Now, mix the resin with the hardener, 2:1, and stir for about two minutes to make the epoxy. Do this is small batches, because (as I learned the hard way), it heats as it hardens, and the larger the batch, the faster it hardens. (Anyone ever made a paddle or study desk in college? This is the same stuff, but in larger volumes.)

Coat the top of the wood surface with a good layer of the epoxy. Then, lay down a strip of fiberglass and paint on another coat of epoxy on top of the fiberglass, soaking the fiber through. Make sure there are no bubbles between the fiber and the floor surface.

Repeat all the way around the floor surface, and add second and third layers to the areas that need more support. Allow to dry thoroughly.

Once the floor part is done, bolt the base for the driver's seat onto the floor with long screws and start the process all over again, layering the fiberglass over the seat base corners and soaking with a coat of epoxy.

Now, mix the wood filler putty with the accompanying hardener, in small batches (you only have a couple of minutes before it sets).

Fill in the low spots with the wood filler, allow to dry for 24 hours, and then sand smooth.

Vacuum well and then spray the underside of the carpet and top of the floor with glue - 3M Industrial Grade Adhesive (thanks, mom). Put the carpet back in place - but be sure to smooth out the wrinkles as you lay it back down.

The seat is now solid and mounted on new flooring.
Good as new (maybe better).

Finally done. This is my second favorite view from the boat (my favorite being of Matt wake boarding or slalom skiing - he's really good)!

Time to work on those farmer's tans!

Wednesday, June 3, 2009

Awkward


Ahahaha, been laughing at this site linked from Big Jen.

Monday, June 1, 2009

Cotton Row Run

Okay, so I'm finally getting to look through some of my photos from the Cotton Row Run a while back. My horrible photography skills kept me from taking any really good ones, but this should give you a taste of what I saw.

Sprinters up the hill.


I started out at the Fulchers', high atop Cardiac Hill. They have the best viewing location for the half-way point of the race as it bends all the way around their yard during the ascent. It's fun watching the first set of sprinters race up the hill. Slowly, the runners become joggers, and then walkers, and then grunting, sweating crawlers. Me, I was offered a hot cup of coffee and a lawn chair for the ultimate viewing pleasure. No sense of being so tired and out of breath so early in the morning!

Luke S. and Bill B. were too quick up the hill for me to even get a decent photo of either of them. Mark S. too.

Manda was close to the front of the pack with Wade right behind.

I'm telling you - the girl's got GUNS!! I need to get a photo of her in all of her Body Attack (Jazzercise) glory. Major buffness going on! She did better than last year, even after falling and bloodying up a knee. Tough stuff.


Wadie Pie.


Here comes my honey.


Ryan says, "Dude!" while Amy threatens to punch the camera.
That hill is no small feat!


Here are the big bro and lil sis at the finish line. All smiles now, Amy!


A group shot of several of the team:
Wade, Matt
Amanda, Amy, Ryan, Luke


I have had a lot of fun watching you guys! Last year it was just Charlie, Manda Panda, and Bill B at the 10k. This year there were at least 6 more. Congrats, you guys!