Life with newborn twins and a toddler is busy — life with newborn twins and a toddler when one of the newborns has medical issues is insane. Our daughter, M, has problems with aspiration and reflux. At 3 weeks old we took her for two swallow studies where they determined that she was unable to safely swallow regular liquids or thickened liquids without aspirating into her lungs. At 4 weeks we had an NG (nasal) feeding tube placed. Tomorrow she will have a g-tube (abdominal feeding tube) placed. The NG tube has made her already significant reflux worse and can cause oral aversions and significantly increase the gag reflex so it was always only a short-term solution. The good news is that once we put the NG tube in and she was able to get enough calories and grow she has been able to safely swallow. We are working with a feeding therapist to increase her oral intake, but it will be a while before we can get rid of the tube completely (optimistically a few months and everyone tells us that almost all kids are tube-free by 2 years). We don’t know why she has swallowing issues – every doctor (pediatrician, ENT and GI) has a different theory. We are having her esophagus and trachea scoped tomorrow while she is under anesthesia and hope to get some more answers.
To say that this has been stressful is a massive understatement. In addition to everything that surrounds simply feeding her, she still cries a fair amount from discomfort (before the NG tube she screamed for hours and hours a day from pain and hunger). Its meant that caring for all three kids on your own for any extended period of time is impossible. We’ve enrolled L in daycare three days a week and are relying on help from friends and family the other two days a week. My mom has been a LIFESAVER and flies in every-other week to help out. She has booked trips through the first week of June to help us.
I realize that no one plans to have a kid with medical issues, but good lord this is not at all what I imagined.
