debra of America
Email
Email
Facebook
Facebook
Instagram
Instagram
LinkedIn
LinkedIn
X
X
Donate
Donate
Make a donation to debra of America and support our mission to improve the lives of those with Epidermolysis Bullosa (EB). Employer matching. Tax-deductible.
EB Community Survey: Help Shape Our Programs & Services
EB Community Survey: Help Shape Our Programs & Services
đ 2026 debra Care Conference (DCC) | Los Angeles | July 26-29 đ
đ 2026 debra Care Conference (DCC) | Los Angeles | July 26-29 đ
Attend the debra Care Conference to connect with and support the Epidermolysis Bullosa (EB) community and get the latest research and treatment updates.
đŚ 2026 DCC Newcomer Grant: Apply Now!
đŚ 2026 DCC Newcomer Grant: Apply Now!
Run with #TEAMDEBRA
Run with #TEAMDEBRA
Contact Us
Contact Us
About EB & Getting Involved
Miami Event: 2026 Blossoms and Butterflies 5K đ¸đŚ
Miami Event: 2026 Blossoms and Butterflies 5K đ¸đŚ
2026 Blossoms and Butterflies 5K
About EB
About EB
Learn about Epidermolysis Bullosa (EB), a rare genetic disorder, its symptoms, treatments, and personal stories from the EB community at debra of America.
More Ways to Get Involved
More Ways to Get Involved
Personal EB Stories â¤ď¸
Personal EB Stories â¤ď¸
Meet some of the incredible people who make up our Epidermolysis Bullosa (EB) Community. Their personal stories offer insight into life with EB.
News & Blog
News & Blog
Subscribe to Emails
Subscribe to Emails
Subscribe to access the latest resources, news, information and ways to get involved to support individuals and families affected by Epidermolysis Bullosa (EB) through debra of America.
The debra Shopđâ¤ď¸
The debra Shopđâ¤ď¸
Get Help
Programs & Services
Programs & Services
Explore our Mentorship programs, EB Nurse Educator Program, New Family Advocate Program, debra Care Conference & additional support services.
Getting Diagnosed with EB
Getting Diagnosed with EB
Approved Treatments for EB
Approved Treatments for EB
Learn about FDA-approved treatments for Epidermolysis Bullosa (EB) and explore the latest advancements in therapy development to alleviate EB symptoms.
Clinical Trials for EB đŹ
Clinical Trials for EB đŹ
EB Doctor's Guide for Kidsđ
EB Doctor's Guide for Kidsđ
Make doctor visits easier for children with Epidermolysis Bullosa (EB) using a customizable EB Social Story. Download now!
EB Resources for Medical Professionals
EB Resources for Medical Professionals
Access key resources for healthcare professionals on Epidermolysis Bullosa (EB), including emergency care, diagnosis, treatment, and approved therapies.
ZEVASKYNÂŽ for RDEB: Qualified Treatment Centers
ZEVASKYNÂŽ for RDEB: Qualified Treatment Centers
Whether you are considering ZEVASKYN for RDEB treatment, have already undergone treatment, or just want another form of support, stay connected with us here
Share Your Story đ
Share Your Story đ
EB Connect
EB Connect
đĽ EB Care, Management & Research Videos on EB Connect
đĽ EB Care, Management & Research Videos on EB Connect
EB Care Guides đŠš
EB Care Guides đŠš
Peer-to-Peer Tips!
Peer-to-Peer Tips!
View on mobile