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Free Webinar: Learn About Cutting-Edge Developments in Research
Free Webinar: Learn About Cutting-Edge Developments in Research
New England Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS - Marfan Foundation
New England Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS - Marfan Foundation
For the Symposium Program: Click here If the registration fee is an issue, please contact Eileen at enovins@marfan.org.
Marfan, Loeys-Dietz, & VEDS Symposium 2024: The Latest on Diagnosis & Management - Marfan Foundation
Marfan, Loeys-Dietz, & VEDS Symposium 2024: The Latest on Diagnosis & Management - Marfan Foundation
Mejorando su Vida con Marfan, Loeys-Dietz, y VEDS - Marfan Foundation
Mejorando su Vida con Marfan, Loeys-Dietz, y VEDS - Marfan Foundation
Únase a nosotros por nuestro simposio, Mejorando su Vida con Marfan, Loeys-Dietz y VEDS. Las presentaciones, que contarán con la participación de expertos médicos de Puerto Rico y otras partes de los Estados Unidos, estarán dirigidas a las personas afectadas y sus familias. Los asistentes tienen la oportunidad de hacer preguntas a los expertos. También […]
New Jersey Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS - Marfan Foundation
New Jersey Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS - Marfan Foundation
Top Things to Know: Cardiovascular Management of Aortopathy in Children
Top Things to Know: Cardiovascular Management of Aortopathy in Children
Pediatric Aortopathy Scientific Statement from AHA
Pediatric Aortopathy Scientific Statement from AHA
Know the Signs - Marfan Foundation
Know the Signs - Marfan Foundation
Mental Health Warning Signs
Mental Health Warning Signs
School Concerns - Marfan Foundation
School Concerns - Marfan Foundation
Parent Toolkit - Marfan Foundation
Parent Toolkit - Marfan Foundation
Support for Parents/Guardians of Children w/Marfan, LDS, related conditions - Marfan Foundation
Support for Parents/Guardians of Children w/Marfan, LDS, related conditions - Marfan Foundation
Mindfulness Series: Breathing Into Peaceful Awareness - Marfan Foundation
Mindfulness Series: Breathing Into Peaceful Awareness - Marfan Foundation
Marfan Syndrome - Marfan Foundation
Marfan Syndrome - Marfan Foundation
What are the Key Features of Marfan Syndrome? Marfan syndrome and related conditions affect the body’s connective tissue. Connective tissue holds the body together and plays a role in its growth and development. Because connective tissue is found throughout the body, Marfan syndrome and related disorders can affect many parts of the body, including the […]
Camp Victory - Marfan Foundation
Camp Victory - Marfan Foundation
Registration fees include lodging, meals, and activities, and thanks to the generous support of Camp Victory donors, all fees have been significantly discounted. A limited number of scholarships are available. To apply, please complete the application form here. Scholarship applications must be received at least eight weeks before the start of the camp. Please contact Andrea […]
Write Your Legal Will Online, Free & Simple | FreeWill
Write Your Legal Will Online, Free & Simple | FreeWill
Walk for Victory - Marfan Foundation
Walk for Victory - Marfan Foundation
Marfan Glossary
Marfan Glossary
Foundation's Everest Award Funds Research for Potential New Aortic Dissection Prevention and Treatment
Foundation's Everest Award Funds Research for Potential New Aortic Dissection Prevention and Treatment
The Marfan Foundation has granted its second Everest Award to a team of researchers led by Julie De Backer, MD, PhD, a cardiologist and clinical geneticist at Ghent University in Belgium who actively provides care to individuals with Marfan syndrome and supervises clinical research of the condition. If successful, Dr. De Backer’s project may lead […]
Find a Doctor
Find a Doctor
Marfan Connect
Marfan Connect
Camp Victory
Camp Victory
Continuing Medical Education & Other Courses
Continuing Medical Education & Other Courses
Mental Health Resources
Mental Health Resources
School Packets
School Packets
Aorta and Aneurysm Definitions
Aorta and Aneurysm Definitions
Tell Loved Ones How They Can Help: Guide
Tell Loved Ones How They Can Help: Guide
Attend a Symposium (Austin & Portland Up Next)
Attend a Symposium (Austin & Portland Up Next)
Emergency Preparedness Kit & Card
Emergency Preparedness Kit & Card
Non-Emergency Medical Questions: Help & Resource Center
Non-Emergency Medical Questions: Help & Resource Center
Donate to Support Our Life-Saving Mission
Donate to Support Our Life-Saving Mission
The Marfan Foundation Website
The Marfan Foundation Website
Know the Signs - Marfan Syndrome
Know the Signs - Marfan Syndrome
Know the Signs of an Aortic Aneurysm and Dissection
Know the Signs of an Aortic Aneurysm and Dissection
Calendar - Marfan Foundation
Calendar - Marfan Foundation
Virtual Support Groups
Virtual Support Groups
Mental Health Resources
Mental Health Resources
Directory of Medical Institutions (Clinic Directory) - Marfan Foundation
Directory of Medical Institutions (Clinic Directory) - Marfan Foundation
Walk for Victory - Marfan Foundation
Walk for Victory - Marfan Foundation
Special Events
Special Events
The Marfan Foundation on YouTube
The Marfan Foundation on YouTube
Research Study: Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders
Research Study: Ehlers-Danlos Syndromes & Hypermobility Spectrum Disorders
Sydney Lerman Pediatric Hospitality Program
Sydney Lerman Pediatric Hospitality Program
Share Your Story
Share Your Story
Volunteers for Victory
Volunteers for Victory
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