Monday, February 3, 2014

#TinyHeartsLotsofLove

Families of children with congenital heart defects can be downright inspirational. We are blessed to be surrounded by other families who have been touched by CHD who shine brightly. Recently the kindness of two of these families has inspired our family to do something fun for CHD Awareness Week which runs from February 7  -  14 this year.

We have some precious friends of ours, the Solomons, who we met through the CHD support group at the hospital where Pierson is treated who lost their daughter Elise on Christmas of last year. This past Christmas they participated in the Advent Conspiracy where each day leading up until Christmas they did something nice that would bless others to celebrate the Christmas season. Truly inspirational considering that the countdown to Christmas was not just a countdown to presents and lights but also leading up to the one year anniversary of when they lost Elise to CHD.

Another heart mom friend of ours and her son Jacob who has a similar heart defect to Pierson recently performed a random act of kindness by delivering a cup of hot chocolate to their school crossing guard on an uncharacteristic-for-Texas freezing cold day.

Pierson and I were looking at disposable coffee cups at Target on Saturday and decided we needed to do like Jacob and his mommy and deliver a warm cup of goodness to our crossing guard this Friday, which is forecasted to be below freezing. We decorated the cup last night and it dawned on me -- Friday, is the first day of CHD Awareness week.
If we're doing a random act of kindness on that day, why not copy our friends' example of what they did for the Advent Conspiracy and perform a random act of kindness every day during CHD Awareness Week? We will do this to honor every person ever born with a broken heart, the warriors who fight every day, the angels who fought harder battles in their short lives than most people who live to be 100 ever do, the medical professionals who spend countless hours saving the lives of children born with CHD, the child life specialists who enhance their lives, the volunteers who invest their own time and money in to making our children smile, and the countless people who pray for our children and plead with God for their lives and comfort for us.

We have been on the receiving end of so much kindness since our journey with Pierson's broken heart began. We have had meals delivered to us, toys given to Pierson, attended parties and special events for heart kiddos and been covered in prayer by hundreds of people, some of whom we will never meet. We have been blessed in our trial. We are thankful.

So, to celebrate CHD Awareness week I want to invite you to participate in a campaign I am initiating called #TinyHeartsLotsofLove . Here's how it works. On any day during CHD Awareness Week (or every day, your choice) perform a random act of kindness in honor of the 1 in 100 people born with CHD and all the professionals and volunteers who fight for our children. Take a picture and via whatever social media outlet your prefer hashtag that picture with #TinyHeartsLotsofLove.  I can't think of a better way to honor those affected by CHD than performing acts of kindness. Whether you have a CHD, a family member does, or a friend, or you just happened upon this blog -- let's get this going! Imagine the difference we could make in 7 days. 

Congenital Heart Disease doesn't have celebrity endorsements or good "marketing"  and most people have no idea what a congenital heart defect is but I would like to think that kindness is better than celebrity and giving thanks by showing love is the best endorsement our cause could have. We really are a great community and our kids are miracles whether their lives last minutes or 100 years. Let's spread awareness through kindness and love. #TinyHeartsLotsofLove

3 comments:

  1. Replies
    1. Thank you Aimee! I hope this makes a big impact! People like you will make the difference.

      Delete
    2. I am writing about it on my blog right now and encouraging my readers to share and do it! Feel free to comment and give creative ideas for those that may not think they are creative. http://houseoffaucis.blogspot.com/

      Delete